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Nov 19, 2010

Seeking Advice on Living with a Colostomy Bag

Topic Explanation
The discussion revolves around seeking advice and sharing experiences related to living with a colostomy bag, particularly in cases where the colostomy was intended to aid the healing of rectal issues such as an anterior anal fissure. The original poster, Pami, explains their ongoing struggle with high output from their colostomy, which behaves more like an ileostomy, and their unsuccessful healing post multiple surgeries and treatments. Pami is seeking advice and personal experiences from others who might have faced similar challenges.

Helpful Insights and Advice from Replies
1. Hyperbaric Oxygen Therapy:
- Some individuals have experienced significant healing from rectal issues through hyperbaric oxygen therapy, which involves breathing pure oxygen in a pressurized room or chamber. This therapy increases oxygen in the bloodstream, which can aid in healing wounds.

2. Dietary Adjustments:
- Certain foods can impact the output of an ileostomy or colostomy. Foods like marshmallows, black licorice, and bananas have been noted to slow down the output and thicken it. Conversely, many other foods might increase output or cause issues.

3. Medication and Supplements:
- Taking Imodium (loperamide) can help regulate bowel movements by slowing down the gut movement and reducing output. This can be particularly useful for managing high output in ostomy bags.
- Some have found relief in using low dosage time-released morphine and supplements like indole 3 (from Now Products) to manage symptoms and complications related to their ostomy and rectal health.

4. Ostomy Irrigation:
- For some, ostomy irrigation can help in regulating bowel movements and managing output. However, effectiveness can vary, and some individuals may not achieve the desired results.

5. Seeking Expert Medical Advice:
- It is recommended to consult with highly experienced colorectal surgeons or visit specialized medical centers like teaching hospitals or renowned clinics (e.g., Mayo Clinic) for second opinions or specialized treatments. This can be crucial for complex cases where standard treatments have failed.

6. Utilizing Online Resources and Support:
- Engaging in online forums and support groups can provide emotional support and practical advice from others who have similar experiences. It can also be a valuable resource for discovering new treatments and coping strategies.

These insights reflect a combination of personal experiences and suggestions that might be beneficial for someone dealing with
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