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Nov 19, 2010

Seeking Advice on Living with a Colostomy Bag

This topic is about managing the challenges of having a diverting colostomy, particularly when dealing with excess output and delayed healing after surgery for an anal fissure. The person sharing their experience has been through multiple surgeries, yet the fissure remains unhealed, leading to difficulties in daily life. They are looking for advice on how to manage these issues and improve their situation.

Here are some helpful insights and advice shared by others:

1. Hyperbaric Oxygen Therapy (HBOT)
- Some people have experienced significant healing of difficult wounds after undergoing HBOT sessions. This therapy increases oxygen in tissues and helps with wound healing. It's commonly used for divers and chronic wounds.

2. Regulating Output
- Taking one Imodium (loperamide) tablet daily can help slow down bowel movements, leading to more predictable evacuations.
- If the colostomy can be "trained," colostomy irrigation might be an option to empty the colon on a schedule, allowing for stool-free periods of 24–48 hours.
- For very liquid output, foods like marshmallows, black licorice, bananas, and sugary items can help thicken the stool. Some people find relief with prescribed time-release low-dose morphine to slow motility.

3. Skin and Pouching Challenges
- Watery output can irritate the skin around the stoma. Using first-aid ointments and a proper skin barrier can help protect the skin until the output is better managed.

4. Supplements
- Indole-3, a supplement from NOW Products, has been mentioned by someone as helpful for healing rectal issues, possibly by affecting estrogen metabolism.

5. Hernia and Obstruction Concerns
- Be aware of the signs of a hernia or blockage, as these may require surgical intervention.

6. Seeking Further Medical Help
- Consider getting additional opinions from high-volume colorectal centers or teaching hospitals known for handling complex cases. Researching surgeons with a track record of success in repairing anal and rectal defects can be beneficial.
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