Aging with an ostomy can bring new challenges, especially as we enter our senior years. For someone who has lived with an ileostomy since childhood, like the 66-year-old poster, the thought of age-related changes affecting self-care can be concerning. She is particularly worried about the possibility of declining eyesight, hand strength, or mobility, which might make it difficult to manage her ostomy independently. While her supportive spouse is willing to help, she is hesitant to rely entirely on him. She is seeking advice from other long-term or senior ostomates on how they are coping and what plans they have in place for the future.
Here are some helpful insights and advice shared by others:
1. Many seniors continue to manage their ostomy care independently well into their 80s and 90s. In fact, some find that emptying and changing an ostomy pouch can be easier than managing a normal bowel movement.
2. It's beneficial to train a spouse, partner, or family member early on:
- Have them observe ostomy-nurse teaching sessions.
- Allow them to practice applying a pouch while you supervise.
- Keep the routine simple and methodical to make it easier if you lose strength or dexterity.
3. Organize supplies for assisted changes by laying everything out in sequence. Use a belt to anchor a drainable pouch and schedule changes in the morning before eating to minimize output.
4. Consider home-care nurses, private duty aides, and continuing-care or retirement communities as backup options when family help is unavailable. Planning a move to such a setting has relieved worry for some couples.
5. Open and matter-of-fact conversations with loved ones can reduce embarrassment and make future assistance more likely. Couples who approached it calmly found it strengthened their bond.
6. If you are single, remember that you can still adapt. Some members have managed changes one-handed after a stroke or shoulder fracture and with poor eyesight. Preparation, patience, and creativity are key.
7. Common fears include arthritis, macular degeneration, or loss of hand strength. Focus on your present abilities while monitoring your health, and investigate aids like grip-assist tools, magnifying mirrors, and better lighting.
8. Maintain perspective: a stoma is life-saving. Keep a positive outlook, enjoy daily life after each change, and recognize that aging with a stoma is better than the alternative.
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