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Jan 27, 2024

Ups and Downs

This topic is about a high-school choir teacher who is adjusting to life 8½ weeks after ostomy surgery. She has returned to work but is facing some challenges, including feeling isolated because her colleagues don’t fully understand her experience. Here are some of her main concerns and the advice she has received:

- She is worried about having a leak in front of her students.
- Her wardrobe has been a challenge because her stoma is at her waistline, making her previous jeans uncomfortable. She is currently wearing leggings and dresses.
- Her eating habits have changed, and she now eats small snacks every 2-3 hours because her stomach can only handle small amounts.

Despite these challenges, she has found some breakthroughs and received helpful advice:

1. She discovered that her old jeans sit 2 inches below the wafer, so she can wear them again, which has reduced her wardrobe stress.
2. She tries to dress more formally at work but is open to casual options like joggers on weekends.
3. Her stoma has stabilized in an egg shape, and she now uses a convex bag.
4. She created an acrylic template for faster and more accurate wafer cutting.

Here are some pieces of advice and insights she received:

- Emotional and social support:
- Finding a "new normal" takes time, and progress is gradual but real.
- You are not alone; the forum is a great place for support.
- Consider sharing your experience with trusted coworkers or students; they are often curious and supportive.
- Music, humor, and allowing yourself to feel your emotions can aid in healing.

- Leak prevention and management:
- Carry a discreet emergency kit at work with spare bags, barrier rings, and other essentials.
- Learn the early signs of a leak and act quickly.
- Bag extenders can provide extra time if a leak starts.
- Barrier rings help create a seal and protect the skin.
- Convex wafers or bags can improve fit and reduce leaks.
- Nu-Hope support belts can cushion the area and reduce pressure damage.

- Cutting and templating the wafer:
- Using a large pre-cut hole with a custom-shaped barrier ring saves time.
- Acrylic or plastic templates can speed up and standardize cutting.

- Clothing adaptations:
- Stretchy trousers, high-panel maternity jeans, and joggers can be more comfortable.
- Fold stretchy waistbands under the bag or tie joggers above the wafer.
- Mid-rise, stretchy jeans like Gloria Vanderbilt can work well.
- Larger, longer tops can help camouflage the bag.
- Bag covers add discretion and protection.

- Diet and output:
- Eating frequent small meals or snacks can reduce the chance of overfilling the bag.
- High-output ileostomates may need to adjust their diet and fluid intake.

- Supplies and technique streamlining:
- Some people skip gloves to make changes quicker.
- Regularly measure the stoma size and order the correct pouch size as it stabilizes.

- Learning resources:
- YouTube channels featuring long-term ostomates offer practical demonstrations and inspiration.

These insights emphasize the importance of patience, preparation, proper gear, and community support to ease the transition back to work and daily life.
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