Flying with an ileostomy for the first time can feel a bit daunting, but with some preparation and practical tips, you can make your journey much smoother. Here are some helpful suggestions from experienced travelers:
- Packing & Carry-On
1. Bring at least double, or even triple, the amount of ostomy supplies you usually use. Also, pack a complete change of clothes.
2. U.S. airlines allow an extra "medical" carry-on bag at no charge. Make sure to tag it as "cabin."
3. Keep an ostomy travel kit under your seat instead of in the overhead bin. Include pre-cut barriers, pouches, wipes, disposal bags, underwear, and any necessary accessories. Pre-cutting your supplies helps avoid bringing scissors, which can delay TSA screening.
4. Some travelers carry an extra overnight drain bag, leg bag, straps, and aerosol adhesive remover in their backpack. While TSA might ask questions, there have been no reported issues.
- Seating & In-Flight Comfort
1. Choose an aisle seat for easy access to the restroom.
2. Consider using a sheepskin Velcro seat-belt cover to cushion the stoma area.
3. Altitude generally does not cause ballooning, and many travelers have reported no pressure problems on flights lasting up to 11 hours.
- Food & Drink
1. Eat and drink as you normally would unless certain foods typically cause you issues.
2. Some people limit coffee, soda, roughage, and gas-producing foods before flying to reduce liquid output and pouch gas.
3. Empty your pouch before boarding and during layovers. The typical in-flight emptying interval is about 5 hours.
- Security (TSA & International)
1. Full-body scanners often detect the pouch, so be prepared for a pat-down.
2. Inform the TSA officer by saying, "I have an ileostomy," and pat your abdomen. Many travelers report being waved through or given a quick wipe test.
3. You can request a private screening, but many have completed the process in public without issues.
4. For non-English speaking destinations, learn to say, "I have an ileostomy; I don’t have a colon" in the local language.
5. Useful resources include the United Ostomy Association of America (UOAA) "Ostomy Travel and TSA Communication Card" and a UOAA/TSA pat-down demonstration video.
- Contingency Planning
1. Always carry pre-cut supplies. One traveler managed a major leak during descent by changing a pouch in the lavatory and stayed leak-free for the next three days.
2. Have a mental plan for leaks: stay calm and head to the lavatory with your kit if needed.
3. Keep calm and stick to your usual routine; many find flying easier than expected.
- Miscellaneous Tips
1. Arrive early to avoid the stress of being rushed.
2. Don’t hesitate to ask flight attendants for help if needed. Some travelers have received complimentary water and snacks after explaining their ileostomy.
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