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Oct 30, 2024

DIY Ileostomy Deodorant Alternatives and Safety Tips

This topic is about finding alternatives for ileostomy deodorant after a reduction in Medicare coverage for Hollister M9 deodorant. The person usually uses almost two bottles a month but now only receives one, and the cost of buying more is quite high. They are exploring options to make their own deodorant or find cheaper alternatives. Here are some suggestions and insights shared by others:

1. Stretching M9
- Use 4–10 drops of Hollister M9 per application to control odor, which can help make each bottle last longer.
- Some users have successfully used just four drops per use for many years.

2. Commercial, lower-cost alternatives
- Safe n Simple Lubricating Deodorant is about half the price of M9 and works well for some.
- Coloplast Brava Lubricating Deodorant is another option. Check the prescription wording, as limits often come from the supplier's interpretation.
- Provide your supplier with the exact product number to avoid errors.
- If a supplier blames Medicare for limits, ask your doctor to rewrite the prescription or involve Medicare in a conference call to resolve the issue.

3. DIY / household options
- Baking soda can be sprinkled into the pouch to absorb odor.
- Use 3–5 cc of hydrogen peroxide in the pouch; some use it full-strength without irritation.
- Mouthwash like Listerine can be used as a deodorant rinse.
- An aspirin tablet or a few drops of peppermint essential oil can help control odor.
- White Tic Tac breath mints can mask odor.
- Baby oil provides lubrication and a mild fragrance.
- For public restrooms, consider using room sprays like Poo-Pourri or scented hand sanitizers.

4. Cautions & practical tips
- Avoid alcohol-based products on the stoma to prevent skin damage and weakened pouch seals.
- Frequent use of liquids in the pouch can affect the seal, so test cautiously.
- Odor can be related to diet; reducing foods like onion, garlic, fish, and spicy foods may help.
- Consider the cost of DIY solutions, including ingredients and preparation time, as buying a second commercial bottle might be more economical.

5. Insurance/supply advocacy
- Medicaid and some distributors may have bottle-size or quantity limits, often due to vendor policies.
- Ask doctors to specify the exact quantity and size needed on prescriptions.
- If limits continue, consider filing an appeal with Medicare/Medicaid or switching suppliers.
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