Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,431 members
Nov 27, 2024

Recovery Tips After Proctectomy and Ileostomy Concerns

This topic is about recovery tips and advice for someone who has recently undergone a proctectomy and end ileostomy, which involves the removal of the rectum and anus, and is dealing with a shallow stoma and early-stage infection. Here are some helpful insights and advice for navigating this recovery period:

- The poster experienced an infection around the stoma on day 4 post-surgery, which was initially dismissed but later treated with antibiotics after being transferred to a hospital in Boston.

- Concerns include how long the perineal stitches are at risk of tearing. A nurse mentioned 4 weeks, but online sources suggest it could be up to 6 months.

- The poster has a shallow or flush stoma with some loosening sutures and is using a deep-convex appliance with an ostomy belt to help draw the stoma outward. However, the belt is uncomfortable and may shift during sleep.

- Best sleeping positions are a concern. While staff advise against lying on the back due to perineal pressure, the poster feels less pressure in that position.

- The poster is still on pain medication, feeling very sore, fatigued, and worried about the possibility of needing further surgery.

Additional questions and information include:

- Extreme fatigue is a significant issue, with the poster mostly staying in bed and only managing short walks around the house. There is a fear of complications but little energy to move more.

Advice and insights for recovery:

1. Seek follow-up care:
- If pain, fever, or overall condition worsens, contact the surgeon or return to the ER. A home-health nurse can help monitor the wound and stoma.

2. Healing time and stitch safety:
- Perineal wounds heal at different rates. Some people needed months, with one taking up to 6 months for stitches to be secure. Chemo or radiation can prolong healing, so expect gradual improvement.

3. Activity and exercise:
- Start with short walks and gradually increase distance. Movement helps circulation and recovery. Ensure a diet rich in protein and balanced nutrients to support tissue repair.

4. Sitting and sleeping positions:
- It's okay to sleep on the back if it feels better, but avoid prolonged direct sitting pressure on the closed perineum. Consider using a recliner, lopsided sitting, or a high-back chair to stand up without sliding across the wound. Avoid spreading the buttocks while moving and use a sitz-bath on an elevated toilet seat to prevent deep bending.

5. Bathroom and hygiene aids:
- A lightweight armless shower chair in front of the toilet allows the pouch to hang freely over the bowl. Use a sitz bath and carefully dry with a hair-dryer to keep the wound clean and reduce infection risk. Disposable urinal bottles can help avoid extra transfers to the toilet.

6. Stoma appliance and belt:
- A deep-convex wafer is suitable for a low or flush stoma. Some people stopped using an ostomy belt with a Hollister two-piece system because it distorted the flange and caused leaks. Sleeping on the back may cause output to pool around a shallow stoma, so monitor for seepage and adjust the pouch position if necessary.

7. Encouragement:
- Full recovery is possible. Many have returned to activities like running, gym workouts, and even dirt-bike riding once healed. Progress comes in small steps, so patience is key.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,431 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Managing In-Flight Bag Emptying for Frequent Travelers
Say hello to my little friend…
Help Needed: Finding Ostomy Supplies in Cancun
Radiation and Chemo Effects on Colostomy
Hiking Tour in Japan with an Ileostomy: My Experience
Alcohol and Leakage Concerns for Ileostomates
Purple Discoloration on Stoma at 3 O'clock Position
Hey everyone
Barrier Wipes or Spray: Which Do You Prefer?
Ileostomy and Kidney Disease: Seeking Advice and Experiences

New Topics

Rerun: The Fortune Teller's Curse. Part 2
Ostomies Since Birth
S.O.D.
Fun with popcorn
🔮 These are the Horoscopes for the week of August 18, 2025
AN ITALIAN BIRD
B. Withers - Be Kind 50
Black Polyp on Stoma: Seeking Advice and Experiences
B. Withers - Be Kind 91-92
Diabetes Management Challenges with an Ileostomy
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑