This topic is about recovery tips and advice for someone who has recently undergone a proctectomy and end ileostomy, which involves the removal of the rectum and anus, and is dealing with a shallow stoma and early-stage infection. Here are some helpful insights and advice for navigating this recovery period:
- The poster experienced an infection around the stoma on day 4 post-surgery, which was initially dismissed but later treated with antibiotics after being transferred to a hospital in Boston.
- Concerns include how long the perineal stitches are at risk of tearing. A nurse mentioned 4 weeks, but online sources suggest it could be up to 6 months.
- The poster has a shallow or flush stoma with some loosening sutures and is using a deep-convex appliance with an ostomy belt to help draw the stoma outward. However, the belt is uncomfortable and may shift during sleep.
- Best sleeping positions are a concern. While staff advise against lying on the back due to perineal pressure, the poster feels less pressure in that position.
- The poster is still on pain medication, feeling very sore, fatigued, and worried about the possibility of needing further surgery.
Additional questions and information include:
- Extreme fatigue is a significant issue, with the poster mostly staying in bed and only managing short walks around the house. There is a fear of complications but little energy to move more.
Advice and insights for recovery:
1. Seek follow-up care:
- If pain, fever, or overall condition worsens, contact the surgeon or return to the ER. A home-health nurse can help monitor the wound and stoma.
2. Healing time and stitch safety:
- Perineal wounds heal at different rates. Some people needed months, with one taking up to 6 months for stitches to be secure. Chemo or radiation can prolong healing, so expect gradual improvement.
3. Activity and exercise:
- Start with short walks and gradually increase distance. Movement helps circulation and recovery. Ensure a diet rich in protein and balanced nutrients to support tissue repair.
4. Sitting and sleeping positions:
- It's okay to sleep on the back if it feels better, but avoid prolonged direct sitting pressure on the closed perineum. Consider using a recliner, lopsided sitting, or a high-back chair to stand up without sliding across the wound. Avoid spreading the buttocks while moving and use a sitz-bath on an elevated toilet seat to prevent deep bending.
5. Bathroom and hygiene aids:
- A lightweight armless shower chair in front of the toilet allows the pouch to hang freely over the bowl. Use a sitz bath and carefully dry with a hair-dryer to keep the wound clean and reduce infection risk. Disposable urinal bottles can help avoid extra transfers to the toilet.
6. Stoma appliance and belt:
- A deep-convex wafer is suitable for a low or flush stoma. Some people stopped using an ostomy belt with a Hollister two-piece system because it distorted the flange and caused leaks. Sleeping on the back may cause output to pool around a shallow stoma, so monitor for seepage and adjust the pouch position if necessary.
7. Encouragement:
- Full recovery is possible. Many have returned to activities like running, gym workouts, and even dirt-bike riding once healed. Progress comes in small steps, so patience is key.
See full discusison