This topic is about managing night-time challenges for those with a permanent ileostomy, particularly dealing with diarrhea and ensuring a comfortable sleep. The person sharing their experience is looking for ways to reduce the number of times they need to get up at night to empty their pouch. They are also curious about the effectiveness of absorbent crystals, specialized ostomy underwear, and whether it's possible to sleep on their stomach again. Here are some helpful tips and insights:
1. Eating and Drinking Schedule
- Try to stop eating 4-5 hours before bedtime to help calm the stoma overnight.
- If you get hungry late at night, stick to a small snack like a cracker.
- Sip fluids throughout the day and avoid drinking large amounts after mid-afternoon.
2. Food and In-Pouch Thickeners
- To firm up the output, consider eating marshmallows, undissolved jelly or Jell-O cubes, jelly babies, pastries, bread, potatoes, bananas, rice cakes, or a spoon of peanut butter about an hour before bed.
- Mini-marshmallows can be placed directly into the pouch to absorb liquid.
3. Medications
- Some people with an ileostomy take higher doses of loperamide (Imodium) or Lomotil under a doctor's supervision.
- Codeine or codeine-containing pain relievers can also help slow output.
- Be cautious of blockages; slowing the bowel too much can lead to hospital visits.
- Slow-release tablets might not be absorbed properly with liquid output; consider switching to immediate-release versions if needed.
- Imodium contains an opioid-like compound, so excessive use can lead to dependence or mood changes.
4. Larger or Overnight Pouch Options
- High-output pouches can significantly reduce the need to empty at night. For example, the Hollister 18013 pouch with 14505 wafer.
- Overnight drainage systems can connect a high-output pouch to a leg or bedside bag.
- Request samples from suppliers, as many major companies offer them for free.
5. Absorbent Gel Sachets
- Products like Eakin Perform Sachets or gel packs from AlphaMed can thicken liquid output and reduce sloshing.
- Check local availability; in Australia, these are covered by the Stoma Appliance Scheme with an authority script.
6. Underwear and Support Garments
- Consider specialized lines like Ostomy Secrets underwear, Vanilla Blush cotton pants, Stealth Belt, or a Corselet lightweight belt.
- Budget-friendly options include high-waist "tummy-control" briefs or stretchy, flat-lying underwear. Some people sew a small loop inside boxer briefs to tuck the pouch closure.
- Support garments can boost confidence and keep the pouch close to the body, though many stop using them once they feel comfortable.
7. Sleeping Positions
- Sleeping on your stomach is risky and often leads to leaks.
- Side-sleeping on the opposite side of the stoma or a semi-prone position with one leg raised works for many.
- A long body pillow can help maintain a half-side, half-front position.
- Some people set an alarm to empty the pouch before rolling over.
8. Emptying and Cleaning Tips
- Keep a small squirt bottle by the toilet for rinsing, draining again, wiping, and rolling.
- Use Tic Tacs, mint oil drops, or commercial deodorizers to reduce odor.
9. Hydration and Electrolytes
- Aim to drink 1.5–2 liters of fluids per day, including oral rehydration or potassium supplements if output is high.
- Drinking too much at once can increase effluent, so drink steadily throughout the day.
10. Information Sources
- Utilize forum search bars, manufacturer websites, instructional videos, and local stoma associations for more information.
- In Australia, the Stoma Appliance Scheme and the $500/year Incontinence Aids Payment can help cover the cost of belts and accessories.
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