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Jan 11, 2012

Seeking Experiences with Ileostomy Reversal Surgery

This topic is about people sharing their experiences with ileostomy reversal surgery. This surgery involves creating a small-intestinal pouch and then reconnecting it to the rectum. The original poster is looking for insights into how successful these reversals are in the long run, how long they typically last before any issues arise, and how they affect quality of life, especially concerning lifting restrictions and the risk of stoma herniation. Here are some shared experiences and advice:

1. Successful long-term outcome:
- One person had their colostomy reversed a year after the initial surgery. They experienced severe nausea from the pain medication at first, but once the medication was changed, their recovery went smoothly. Three years later, at age 75, they enjoy full health, an unrestricted diet, and can do heavy yard work and lift their grandchildren.

2. Problems leading back to a permanent ileostomy:
- Another individual had a j-pouch that leaked, leading to a year of frequent loose stools and severe perianal irritation. They chose to return to a permanent ileostomy, which they find easier to manage. They can still lift their 5-year-old grandchild by doing so carefully and only for short periods.

3. Surgeon refusal or caution:
- A person with scleroderma and opioid-related constipation was advised against reversal because their sphincter muscles do not function properly. They manage well with an ileostomy but face frequent food blockages.

4. Diet changes after reversal:
- One contributor could eat fruits and vegetables with an ostomy but developed blockages and ongoing incontinence two years after reversal. They are considering returning to a permanent ostomy and are seeking further investigation of their small intestine.

5. General themes across replies:
- Outcomes vary widely; some people live fully without restrictions after reversal, while others experience issues like leakage, skin problems, blockages, or incontinence and revert to an ostomy.
- The timing of the reversal, often about a year after the initial ostomy, and the surgeon's experience can influence success.
- Even with weight-lifting limits, many ostomates or post-reversal patients can safely pick up young children with careful technique.
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