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41,405 members
Jan 24, 2012

Colostomy Reversal Gone Wrong - Permanent Bag Now

This topic is about someone who went through a colostomy reversal surgery, which unfortunately led to complications, resulting in a permanent ostomy and a challenging new stoma placement. Here’s a summary of their experience and some advice they shared:

- The surgery initially seemed successful, but within a day of returning home, they experienced abdominal pain, vomiting, and a low-grade fever, leading to readmission to the hospital.
- An emergency surgery revealed a bowel perforation and peritonitis. Due to the fragile state of the bowel wall from aggressive diverticulitis, a new, permanent stoma was created.
- The hospital stay lasted two and a half weeks, including a week in the ICU. They had a nasogastric tube and abdominal and pleural drains, with a significant amount of fluid removed from around the lung and diaphragm.
- They are currently on temporary heart-rate medication due to surgical stress and infection.
- There was significant weight loss from 161 pounds pre-operation to 129.5 pounds, now at 132 pounds, at a height of 6 feet.
- The new stoma is low, very convex, and barely protrudes, making it difficult to achieve a good seal compared to the original stoma location.
- Emotionally, they have come to terms with living with a permanent ostomy and are grateful for life and family support. They encourage others who are good candidates to consider a reversal if they wish.

Additional insights and advice include:

- Two weeks after discharge, there was slight improvement in the stoma protrusion, but it remains indented. The incision resembles a large question mark and is more painful than previous surgeries.
- They continue to struggle with weight gain but feel emotionally stronger, finding comfort in the permanence of the ostomy.
- For a flush or indented stoma, several people recommend using Convatec ostomy barrier seals with a two-piece Convatec system to build up the area, reduce leaks, and extend wear time to about 5–7 days. Suppliers can provide samples and fitting assistance.
- Postoperative weight changes are common. One person shared that they lost 35 pounds after a similar ICU stay but regained it within a year, offering reassurance that weight often returns with time and proper nutrition.
- Coping strategies are crucial. Leaning on supportive family members can significantly ease both physical recovery and emotional adjustment. Maintaining a positive outlook, having faith, and sharing experiences can help. Engaging in activities like reading or writing, such as creating humorous poems about a stoma, can help normalize life with an ostomy.
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