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Jun 08, 2014

Seeking Advice on Ostomy Surgery for 11-Year-Old - Need Help and Information

This topic is about a mother seeking advice and experiences regarding a proposed surgery for her 11-year-old daughter, who has been struggling with severe constipation and gastrointestinal issues. The surgery involves creating an ostomy with a "button" at the navel to help flush the colon. The mother is looking for more information and alternatives before making a decision. Here are some insights and advice shared by others:

1. It's important to get at least one second opinion from a highly qualified pediatric gastroenterologist or bowel-management specialist before considering any surgery. An accurate diagnosis should come before any treatment.

2. Be cautious with a surgeon who refers to the device simply as a "button" and plans to withhold detailed information until the day of hospital admission.

3. Reach out to The Ostomy Association in Ft. Worth, which is affiliated with the American Cancer Society, for literature, local resources, and peer support about ostomies and bowel-management options.

4. Keep in mind that an ostomy is a significant, life-changing procedure. It can be very beneficial when necessary, but it should only be considered after a clear diagnosis and thorough counseling.

5. Act quickly but carefully. While prolonged undiagnosed gastrointestinal issues can worsen, rushing into surgery without fully understanding the implications can lead to long-term consequences.

6. The community encourages the mother for her strong advocacy for her children and suggests keeping others updated on her journey.
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