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I HAD AN ILLIOSTOMY IN 2010 AFTER U C DAVIS TOOK TOO BIG OF A BIOPSY PIECE OUT OF MY COLON AND PUT A HOLE IN MY BOWL CAUSING ME TO GO COMPLETELY SEPTIC. I HAVE HAD CONSTANT PAIN IN MY LOWER LEFT ABDOMINAL AREA. I ALSO HAVE NOT BEEN ABLE TO LIE DOWN FLAT TO SLEEP,OR LIE ON MY SIDE OR ELSE THE PAIN IS EXCRUCIATING AND BLOOD POOLS IN MY ABDOMEN WHICH POURS OUT OF MY BODY WHEN I STAND UP.I CAN ONLY LIE DOWN(ACTUALLY I SIT UP AND LEAN MY HEAD BACK TO TRY AND GET SOME REST SINCE I CAN'T LIE DOWN)FOR 2 TO 3 HOURS TOPS OR THE PAIN IN MY STOMACH IS UNBEARABLE.I AM ONE OF THE MANY WHO HAVE NO INSURANCE AND CANNOT AFFORD MEDICAL CARE.I HAVE NOT SEEN A DOCTOR SINCE MY POST OP VISIT WITH THE SURGEON WHO DID MY SURGERY IN 2010.HE PROMISED ME HE WOULD REVERSE THE OSTOMY BEFORE I HAD THE SURGERY IN ORDER TO TALK ME INTO HAVING IT DONE IN THE FIRST PLACE,AS I CANNOT AFFORD THE OSTOMY SUPPLIES AND TOLD HIM SO.AT MY POST OP APPOINTMENT HE TOLD ME HE HAD CHANGED HIS MIND AND WOULD NOT REVERSE THE SURGERY.NO OTHER DOCTOR WILL SEE ME AT THE FREE CLINICS WHICH IS THE ONLY PLACE I CAN GO WITH NO INSURANCE OR MONEY,BECAUSE THEY DONT WANT TO BE LIABLE FOR THE COMPLICATIONS I HAVE FROM THE SURGERY.THEY WONT TRY TO FIX ANOTHER DOCTORS WORK.DOES ANYONE ELSE HAVE THESE PROBLEMS?IS IT NORMAL FOR BLOOD TO POUR OUT OF ME SO MUCH THAT IT SOUNDS LIKE I AM GOING PEE.IF I TRY TO DO ANY PHYSICAL ACTIVITY IT GETS WORSE.I HAVE BEEN AFRAID TO DO ANYTHING BECAUSE I AM AFRAID I'LL BLEED OUT ONE DAY AND I HAVE 3 KIDS AT HOME COUNTING ON ME FOR THEIR LIVES AND MY SURVIVAL.IF I GET SOME INSURANCE SHOULD I TRY TO HAVE THIS REVERSED?DO YOU THINK THEY MIGHT FIND OUT WHERE THE BLOOD IS LEAKING FROM?I ALSO LEAK FECAL LIQUID THAT SMELLS LIKE A DEAD ANIMAL.I HAVE BEEN KEEPING MYSELF ALIVE BY USING FISH ANTIBIOTICS SINCE I CANNOT SEE A DOCTOR.NO ONE WILL HELP ME,I DONT KNOW WHAT TO DO WITH THE OSTOMY SUPPLIES MY MOM SENDS ME AS MOST HAVE NO INSTRUCTIONS.I WEAR MY BAG FOR AT LEAST A MONTH OR UNTIL IT FALLS OFF BECAUSE I CANNOT AFFORD TO BUY THEM.MY SKIN GETS BLISTERED HOLES IN IT AROUND THE STOMA BECAUSE THE GLUE ON PIECE GETS LOOSE AND I DONT KNOW WHAT I CAN USE TO HEAL THE SKIN THAT WONT MAKE THE GLUE ON PIECE FALL OFF FASTER.WHICH GOES BACK TO TRYING TO LIVE ON 550.00 PER MO.CHILD SUPPORT WITH 3 KIDS AND NO DISABILITY BECAUSE OUR GOVERNMENT IS TRYING TO STALL ME OFF IN HOPES THAT I DIE BEFORE THEY HAVE TO GIVE BACK ANY OF THE FICA THEY TOOK OUT OF MY CHECKS ALL MY WORKING CAREER UP UNTIL I BECAME SELF EMPLOYED.I HAVE BEEN TERRIFIED AND REPULSED BY THIS THING THEY HAVE DONE TO ME.I HAVE A HARD TIME LOOKING AT THE STOMA IT STILL FREAKS ME OUT.I CANT SPEND MUCH TIME OUTDOORS AS THE SUN BURNS MY STOMA THROUGH MY CLOTHES.HOW DO YOU GO OUTSIDE WITHOUT THIS HAPPENING?I CAN'T SHOWER VERY OFTEN(WHICH I THINK I MISS THE MOST)BECAUSE IT LOOSENS THE GLUE ON THING.ARE THE SURE SEAL THINGS SUPPOSED TO GLUE ONTO YOUR SKIN?HOW DO THEY HELP?IS IT NORMAL FOR LIQUID FECES THAT SMELLS ROTTEN TO LEAK OUT OF YOU?I FEEL AS IF I HAVE 2 LEAKS INSIDE ME.ONE FECAL ONE BLOOD.DO THEY USE MESH TO HOLD STUFF UP?DO YOU THINK THAT IS WHY IT HURTS TO LIE DOWN OR ON MY SIDE?COULD IT BE STITCHED TO MY BODY SOMEHOW AND PULLS IF I MOVE THE WRONG WAY?I HAVE SO MANY QUESTIONS AND NO ONE TO ASK.ANY HELP FROM ANYONE WOULD BE A BLESSING AS THE ONLY TWO PEOPLE I KNEW THAT HAD THIS DONE HAD IT REVERSED AND ARE DEAD NOW AS THEY HAD COMPLICATIONS FROM THEIR REVERSAL SURGERY.WHICH IS ANOTHER REASON I AM TERRIFIED.MY CHILDREN NEED ME.I AM ALL THEY HAVE WHICH IS TRULY SAD AS I CAN'T DO MUCH FOR THEM.I WOULD LIKE TO TALK TO OTHERS WHO HAVE EXPERIENCE IN THIS AREA.I HOPE TO EDUCATE MYSELF AND HELP MYSELF SO I CAN HELP MY FAMILY.
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m, 47
New ileostomy struggling with GI issues just looking for some help ...
Louisiana, United States
