Meet & talk to fellow OstoMates 20,285 members

Byrneoo
member

About
had my ileostomy on the 9th July 2019 after 26 years of UC. Had long periods of remission mainly because I smoked which kept the symptoms at bay.
Every time I gave up smoking I developed UC within a week or 2. Tried most meds and one biological drug which didn't work. The side effects from the biologic drug were horrendous. Think twice and do your homework before take these biologicals. Ended up in hospital in April this year very unwell with a severe U C flare even though I was still smoking. Made the decision after a few days in hospital I wanted rid of my colon/colitis. I'm now approx 4 months post op.
I'm feeling good but it's certainly not an upward curve. Developed severe colitis and proctitis in my remaining piece of colon and anal passage 4 weeks after operation. Was passing a lot of water, blood and severe pain in my butt Taking pentasa enemas and salofak enemas which have eased the symptoms a lot.
This has been a downer as I thought no colon no colitis. Hopefully things will keep improving and looking at some of the members on this site,I'm lucky this is all I have. Any advice/ experience with colitis after surgery in remaining colon would be appreciated. Thanks Kevin.
Other Members
f, 60
Diagnosed with colon cancer in March 2012. It has been a whirlwind of appointments and a f...
Manitoba, Canada
f, 54
My name is Sloane and I had my surgery in June, so I'm a rookie still. Before my surgery I...
New York, United States
f, 50
I am looking for people to talk to, make new friends and who knows maybe i'll even meet so...
United Kingdom
f, 57
Massachusetts, United States
f, 53
It would e nice to hear from someone with the same worry's as myself and hear how other p...
United Kingdom
Currently online: 19    
3 members & 16 visitors
Buffi (f)
tessa (f)