Ever wondered how others navigate their ostomy journey?
Trusted by 31,199 members
Roughlife246
member
About
Hello,I had an emergency ileostomy surgery in 2019 due to an intestinal blockage. Soon after I lost my mom so it's been very rough these past 3 years. I've isolated myself alot over this past year dealing with so much. I'm hoping to get some insight on struggles I've been having over this past year (health issues) and I hate this bag (it's brought me nothing but trouble)! I've seen over a dozen doctors within the past few years for pain issues and it's been miserable..
I don't have a colon (1st surgery in 2002 when I was 15 years old) due to polyps (I have the worst form of Gardner's Syndrome). I have a loop ileostomy so still have issues with my back end (pressure in my jpouch). I don't know if I'll have a reversal because they said I have ALOT of scar tissue from all my abdominal surgeries. I've been in pain for over 2 years now 😖
Connect with other members
f, 51
I got my colostomy in April 2023 due to diverticulitis . I'm often ...
Pennsylvania, United States
m, 50
2023 new year day had Emergency surgery results with ostomy bag att...
British Columbia, Canada
f, 70
September 2022 I died for 15 minutes. Prior to The Event, I was ta...
Oregon, United States
m, 41
Hi had my ileostomy since 17th March 2022 was done as emergency sur...
United Kingdom
