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That Awful Smell....

Posted by Franicaa, on Sat Jul 03, 2010 7:28 am
I have an ileostomy, so other people that have one will know exactly what I'm talking about when I say "that awful smell!" I'm not saying that people with colostomies don't get a stink, but I am yet to smell anything as bad as what comes out of bag! The main culprits of "The worst smelling output"-for me, are; fish, too many iron tablets, sausages, eggs, and other things like garlic and onions (as well as producing vast amount of wind!)

I've tried so many deodorisers and mint drops eating less of these foods and even drinking peppermint water after eating these foods, the only problem is, I can never shift the smell! I've even tried the output thickeners but they just made it worse! Everyone here will know exactly what I'm talking about! Especially people with ileostomies, I get teased by my family for stinking out the whole house when I use the toilet!

I would love people to give me any more ideas whether it's stuff I should eat or stuff that I can put in my bag when I change it, I'm open to any ideas just to help mask the awful smell, I'm hopefully going to Uni this time next year, and I don't want to have to pay extra for my own bathroom, but obviously I don't want to stink people out all the time! Please give me any ideas or things that have worked for you!!
Reply by Roch!!, on Sat Jul 03, 2010 9:05 am
Hi ya, i also have an ileostomy and like you have the same problem, so your not alone here! Your right in saying that its worse with certain foods! The only thing i can suggest is do what i do...   keep a spray of impulse in the bathroom!  "into glamour" is a nice one.  Take care. Roch. X
Past Member
Reply by Past Member, on Sat Jul 03, 2010 9:23 am
So with your family teasing you, is that like they're saying their sh#* don't stink!

Personally mine don't smell half as bad as when it did when I had a bowel!  It is also the location of your new bum too!  Basically not far from your nose, naturally you will notice the smell more than where your bum used to be!

My stoma nurse actually told me that the colostomy is far more of a stench than the ileostomy because the colostomy is the large bowel so you could be worse off!

Of course any smelly food that even makes people with intact bowels stink will no doubt make us ileos more so, I find that with all the foods you mention, yes a tad smelly, but have definitely smelt far worse when my bowel-intact brother leaves the toilet!  

I notice that if I have indulged in chocolate or sweets, the output is just a funkier version of same.  And I have been told that marshmallows not only slow the output but sweeten the stench!  Also have heard some people put tic tacs or mints in the bag itself so perhaps give that a try.  The ostomy supply companies all have deodorisers you actually put in the bag too.

Family and friends have never mentioned to me that I smell but then they may just be polite!  But then I probably wouldn't care anyway because like your own family I no doubt think "my sh#* don't stink"!

Hope you find a solution Franicaa!

Jo x  
Reply by panther, on Sat Jul 03, 2010 11:23 am
You can put a few drops of peppermint oil in your bag when you change or empty it.  I work with someone who still has a fully working large bowel, I try to avoid going too the loo for as long as I can after him, trust me the smell is far worst than mine.
Reply by jayski, on Sat Jul 03, 2010 12:18 pm
I use many, many bottles of M9 (made by Hollister). It works really well for every food except fish, which is always nasty! I use much more than the instructions specify (yeah, 9 drops, right!). I keep mine in a squeeze bottle. In fact, if you really want to splurge (it's not cheap), you can even use enough that it'll work on fish. I've tried cheaper alternatives, but none of them worked.
Reply by Franicaa, on Sat Jul 03, 2010 1:07 pm
Thanks for all the help, I'll definitely try the marshmallows, although I'm not really a fan, nut also fruit has seemed to work slightly, pineapple, banana (though I wouldn't advise this because sometimes is can make it worse!)

And Jayski, thank you I will look, luckily enough in the UK we get everything free so I'll try and track the deodoriser down!

And oust doesn't work at all!!!
Reply by Pinky, on Sat Jul 03, 2010 7:58 pm
fish, too many iron tablets, sausages, eggs, and other things like garlic and onions (as well as producing vast amount of wind!)

True for colostomies too!
I read this in the Phoenix magazine and this is what I do: place a eucalyptus cough drop or two in the pouch.  It kills off just about any odor (I don't know about iron tablets).  
Also, if you have it in the UK - a product called "Beano" works wonders for gas.  Take two tablets before eating a meal with the offenders in it.
I also noticed the longer I had my colostomy (18 months now) the less bad the contents smell (usually) - except I had a really bad episode about 2 months ago with Mexican refried beans from a restaurant - never, never again.   Very Happy
Be careful with fresh pineapple - it once blocked my ostomy.  
Good luck in your university!
Reply by mooza, on Sat Jul 03, 2010 8:16 pm
Use the Hollister gel it gives out no smell at all if u can get it in your country or any of the many nodor or pills for the pouch we get all this from our ostomy association get in touch with me if u can we have sooo much we get for free .. Maybe not too much onions etc cheers mooza australia xxxxxxxxxxxxxxxx
Reply by gutenberg, on Sat Jul 03, 2010 9:08 pm
HI there Franicaa, I too have an ileostomy and it was not so much my wife or daughter in for a visit and kept quiet about the smell but it sure bothered me so I set out to do something about it, namely, put a high powered exhaust fan in the bathroom, now this might not sound like much but I had gone through 4 operations, had three heart attacks and decided I could do this myself. This was in July and the heat in the attic, and up and down the ladder, trying to figure out the wiring, sweat running into my eyes and just lucky I didn't electrocute myself in the process, anyway I got the job done, right proud of myself until the next day when I tried to get out of bed, Whooooh, what the hell, every bone in my body hurt so much I had to roll out of bed for the next four days and still in pain but now after using the bathroom I leave the fan running for a while, then I added a room deodorizer which helped somewhat, then I read on one of the forums about a Hollister deodorizer and made a beeline to the drug store and sure enough they had some in stock which I found a really big help, it would have been nice if I heard about this stuff before going through all that trouble, but my wife is happy and when my daughter drops in she doesn't have to ask if its safe to use the bathroom, live and learn, I also have a exhaust fan in my computer room and if nobody is home I can expel air and in a few seconds the smell is gone, before I used to use a fan in the window which I could put in reverse and that worked pretty well.
Oh, the trials and tribulations of being an ostimate, wot. Ed
Reply by bikerboy, on Sun Jul 04, 2010 10:51 am
Personaly Im glad to still be alive.So the smell isnt any worse than being around a bunch of toilet sitters.Of course I live alone and like to think my smell is unique,and its mine.But I also agree that an exhaust fan in a window orceiling keeps the smell down.In these warmer months I spend more time outside.The smell is a small price to pay for getting the upperhand on cancer.
bikerboy greg
Reply by gutenberg, on Sun Jul 04, 2010 12:15 pm
Bikerboy: your first seven words says it all. Sometimes I think people think we had a choice, I remember one guy saying "I'D rather be dead than having to wear one of those bags", Oh yeah, I'm damn sure if the time ever came and he had to make that decision he would be singing a new tune, our lives may be complicated at times but it sure beats the hell out of the alternative, right? Ed.
Reply by lexus1, on Sun Jul 04, 2010 12:31 pm
NA`SCENT !!! I just found this. They have website (Google Na`Scent) get a bottle for about $16/120z)and change your life. It works for fish, broccoli, and espescially shrimp. It is an odor and bacteria squirt a bit into pouch and move on. Much better than M9. Not a deodorant, but it overoxygenates the stuff and so it kills the bacteria (and then the odors) I'm taking a lil 2 ouncer with me everywhere. They will send a sample (2 oz) so SAVE that bottle! Hope this helps you hon. I have had my ileo for under 3 years and I'm still learning. lex
Reply by three, on Sun Jul 04, 2010 2:41 pm
Thanks lexus1,
It's always fun learning new things.
Here's the link to the free ($1.99 shipping and handling) sample page:
Reply by Roch!!, on Sun Jul 04, 2010 4:07 pm
Thankyou for the info, i have just ordered the sample! Cheers... gona give it a go! Roch. X
Reply by lottagelady, on Sun Jul 04, 2010 4:56 pm
Hi Roch,

Did you find a UK supplier or did you order from the US?

Rach xx
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