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Goodbye sex, it was nice knowing you.

Past Member
Posted by Past Member, on Sun Aug 07, 2011 11:23 pm
Let's start by saying that I don't have, never had, and never will have a body part that is worth my life.  Given the choice of "We remove this or you die of cancer" that's not even the beginning of a question for me or for my husband.

That said...when I had my urostomy a couple months ago (and it's taken about this long to be able to assess the damage), to save my life the surgeon also removed my uterus and, because of where in the bladder the tumor was, a substantial part of my vagina.  Not to put too fine a point on it, I'm a 10 year old girl again.

Last week when I visited my gynecologist and, well, it could have gone better.  There are things we are going to try, I'm willing to try pretty much anything, but she didn't seem overwhelmed with optimism.  And if these measures (topical HRT, dilators)  DO work, it'll be months at best.

I don't have it bad in my life at all, really.  A husband who isn't going anywhere, a very aggressive form of bladder cancer that was caught and fully removed at a very early stage.  But I'm not kidding, this is a serious loss for me.  I handle my stress by joking when I can and ahead of the urostomy I quipped, "Hey, I'll still be a woman AND I'll be able to write my name in the snow."  Now it doesn't feel that way anymore.  This isn't about my interest in sex, or my husband's desire for it.  Not really.  It's about a body blow to my self-esteem, my self-image and grieving a loss no matter how necessary it was.

I've always heard that when you can't think of any more to say it's time to shut up.  This seems like a good time for that.
Reply by KennyT, on Mon Aug 08, 2011 2:36 am
Life will at times deal us the bad cards and it is our ability to deal with that that gives us our chance at life. It is a very tough existence and at times we require inner strength to find our way.

Kat your path has been very difficult and I sit here and admire you for your strength. You are a very tough and lovely person.

Ken.
Reply by bob.hewson, on Mon Aug 08, 2011 3:35 am
Being a self proclaimed sex maniac where a minimum of three times a week was not enough to being impotent is a very big steep and one I have still not come to grips with fully.

I still have the outside equipment but unlike being a 10 year old boy I am more like a 100 year old. It does nothing now but just sit there and be annoying.

I have found that there are other ways where satisfaction of a degree can be achieved by both parties, it is just a matter of learning that what was is no and may never be again.

I don't want to try to understand the finer points of your limitations, but just because part of you will not work properly has not shut down the rest of your body. Don't get me wrong in any way, I am not suggesting anything in particular just that there are other options to what you once considered was making love.

I am in no way happy with my new experiences but like you, the remove the bladder or die was not even a question, so, regret all I like, we need to make the best of what is left. And like everyone else, it is not just you or me that is effected by the change, but also our partners.

God bless,
Bob
Reply by mild_mannered_super_hero, on Mon Aug 08, 2011 6:47 am
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Last edited by mild_mannered_super_hero on Wed Aug 10, 2011 1:16 pm; edited 1 time in total
Past Member
Reply by Past Member, on Mon Aug 08, 2011 9:47 am
Word play ....  (for mmsh and anyone who likes word play)

First, I agree with your comments.  Vaginas are really nice things to have.  But not necessary. Vaginal sex is only one part of sexual possibilities.

Second - while I understand your comment (you can have sex by yourself, but not intimacy) - that can be debatable.  And ... yes, intimacy (all kinds) with another person is highly desirable.

I am most intimate with myself.  That allows deeper degrees of intimacy with others.  Just a bit of semantics - I realize.  A little word play.  Intimacy is one of those strange words that can mean so many different things.
Past Member
Reply by Past Member, on Mon Aug 08, 2011 9:52 am
Kat65,

You have already overwhelmed me with your strength, attitude, focus, perspective and your 'Self'.  Just know that when you need a listening ear, this is one place you can find one.  

Be gentle with you and with what ever you are going through each moment.  

Carol
Reply by mild_mannered_super_hero, on Mon Aug 08, 2011 8:52 pm
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Reply by Primeboy, on Mon Aug 08, 2011 10:19 pm
                                 
mild_mannered_super_hero wrote:


"Vaginas are really nice things to have.  


MMSH has a point, Kat, but what's true for the goose is also true for the gander. Consider this bit of British humor which addresses gender equity:
https://www.youtube.com/watch?v=nGRPFUYUUdQ
Past Member
Reply by Past Member, on Mon Aug 08, 2011 10:23 pm
MMSH,

We are not far apart.  I get you.  The hunt .... fishing .... are rarely (or only partly) about the 'hunt (kill)' or the 'fish' for many of us.  Much of it about relationship .... with fellow hunters, fishermen, lake, dog, birds, deer, forest, atmosphere ... so forth.  I wilderness camp - weeks at a time - for intimacy with the environment, spirit, and me.

I agree, the physical act of sex is a small part. Good - really good ...but not all there is.  I had to get a little 'tongue in cheek' with the subject.  Penis and vagina are nice to have but not necessary.  Fun things to play with. There are alway alternative skills and techniques for really good 'sex'.  

I taught phychology (including human sexuality) for 15 years - sex therapist 13 years before that.  I always had my students determine what intimacy and 'sex' meant to them - their own definition not from the text book or other source.  The responses were always amazing and full of insight.  

Intimacy always involved relationship.   .... then .... a relationship with the self is preliminary to intimacy with another person.  "You have to know yourself to give yourself to another person"[according to them].  Key words were trust, honesty, openness, sharing, support and sex was almost an after-thought.   Also, ... other similar terms.  Every symester they amazed me.  When I would ask if they were that way with themselves (trust, honest, open) - that threw them into a loop of thinking.  

So - WORD GAMES with the possibility of life skills - relationship stuff.   Sexual intercourse is fun and feels good but is a relative small part of 'sex'.  I never taught a class I didn't learn from.

The 60's is about the right time - but the statement hold true for me.  If I can't give those things to me, I got nothing to give any one else.  

I am enjoying this conversation but it probably isn't helpful to the topic.  Maybe we can chat again.  I enjoy debat and sharing ideas.  

dawneagle.
Past Member
Reply by Past Member, on Mon Aug 08, 2011 11:20 pm
Thanks all for your input.  I'm feeling much less alone in this now.  And DawnEagle and MMSH?  Please feel free to keep it going if you want.  It is helpful and enjoyable to me to read your interactions.
Reply by godswoman, on Mon Aug 08, 2011 11:32 pm
I hope you understand the spirit that this is sent in. I don't mean to be whiny or minimize your situation. I just want to share what happened to my marriage; so maybe you'll appreciate your man even more!! After 25 yrs of marriage and 1 child, my ex said that he didn't see me like a woman any more, after my ileo, the fight of my life to survive, due to heart attack, stroke, comas, seizures etc... to sum it up a 4 month stay in 2 hospitals.  He left me for a woman 20 yrs younger than me! He was a jerk through the divorce process and he's still a jerk. God bless you!
Past Member
Reply by Past Member, on Tue Aug 09, 2011 12:45 am
Kat65,

Speaking of penis.... well, we almost were ....

I hope this makes you smile....

from MSNBC online news - about Leaning Tower of Pisa...
"vendors in Pisa caught selling erotic souvenirs such as underwear with the famous tower posed as a penis .... can face fines of up to $700".

dawneagle
Past Member
Reply by Past Member, on Tue Aug 09, 2011 10:51 am
I'm sorry to hear of your struggles. I've been offsite for a while, due to an antisocial reclusive misanthropic kick that i may or may not be coming out of.
Past Member
Reply by Past Member, on Tue Aug 09, 2011 12:33 pm

I am misanthropostic from time to time.  More am than not.  That may be due to my egocentricism. I might also be consered sceptic or churl.  

I seem to like me better than most others that presume to be part of this race that tiny beings living on this rock seem to be involved in.  Dern, there goes that tongue twisting around in my cheek again.

Or that may be due to not having an 'other' in my life that is as intimate and permanent as I would choose ... someone like Kat65 perhaps has.  Someone that can conceive of intimacy and staying power beyond penis and vagina.  I still have a tiny piece of me that longs for Walton's Mountain - while not believing in it.  Something like Cinderella.

So Sinfulson, what is it about this particular post that brings you back onsite? Perhaps you can be brought back to humanity - or not.  Always a choice.

Kat65 - when you get tired of this banter, say so.  I can easily turn it off.  People seldom get my humor anyway.  Sinfulsot triggered my warped thinking.  My hope is for some entertainment value while you cope with serious but workable situations.  My classes came up with 96 terms for penis but only 52 for vagina.  Sex - screw ... seemed to have unlimited terms to connote desires, plans, wishes, hopes ......

dawneagle  
Reply by mild_mannered_super_hero, on Tue Aug 09, 2011 9:04 pm
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Last edited by mild_mannered_super_hero on Wed Aug 10, 2011 1:19 pm; edited 1 time in total
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