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Colostomy Reversal (VATER SYNDROME)

Welcome to MeetAnOstoMate
17,060 Members
Posted: Fri Apr 13, 2012 8:08 pm
Hello everyone,
I had a question about reversal of a colostomy. I have had my colostomy since I was born and had it reversed just a year into life. Then after another year or so things were not working and I was getting enemas and rashes so they gave it to me once again. Now at 24 I want to give it another try and see if it's possibly. Does anyone have stories of having it their whole life and then getting a reversal and hopefully successfully??
I also have something called VATER syndrome, it is very rare and if I recall I had an imperforated anus and this is one of the main reasons that I had the colostomy. My mom also believes that the docter said that I may have no nerve endings in my colon.

If anyone has a little information good or bad that they could provider for me, I would appreciate it. My whole life has kind of been a struggle with it. I was very athletic but I wasn't able to do any kind of sports because I would have accidents and I would not be able to keep the patch on. It seems like I still have problems that if I have an accident because it becomes majorly loose.
Thanks!!
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