For a year and half now I have been having bleeding every single day from my rectal stump...then the cramping...it feels like I am in childbirth
the pain is so severe it almost knocks me out......They did a biopsy last year and it showed lymphoma...they did nothing about it...
this year they did more biopsies and say not cancer ....SEVERE diversion colitis......if anyone has dealt with this please let me know if it can be healed...I am very high
risk for surgery....I will probably die if they try to operate....so right now I am just trying to stop the PAIN......thanks for any advice
Yes Indeed !!! My story almost exactly . I just spent ten days in hospital because of the pain exactly as you describe . ABout two AM two weeks ago I somehow drove myself to the local Doc on call ( just happened to be my own GP on duty....Luckily ) . She was amazed I was still standing . The inflammation appears to constrict the Urethra and block my Urine. My belly was huge ...happened very fast ...in hours. My GP put in a Foley and drained me as sthe he spoke to the ambulance dispatcher. Got me to hospital fast. IV Antibiotics worked and then Flagyl / Cipro ? Pentassa ( Azsulfadine) in pill form , still on it . . I was in about ten days.
One difference is that I had almost no blood and they were VERY concerned about blood in the stool....That can be a Very bad sign. Do NOT accept their dismissal of your concerns ....they are valid and serious !!!
The pain you describe matches my experience exactly and I just Cannot describe how bad that pain is ....."Spikey bowling Ball trying to escape my Rectal STump !!! Only the Rectal Stump and my J-Pouch are left and I have an Ileostomy .
My entire Pelvis was on fire and explosing , I could not even speak from the pain in my Butt . It stretched from the base of my spine , down between my legs and up to my bellly button . and out to both hips and especially around the Butt Cheeks ....just mind-blowing pain. Never felt anything like it. magoomoran @ gmail.com please write , I want to hear more of your story Please .
Now the solution my friend !! It is clear that your solution will be the one that I'm planning before Christmas. The Rectal stump and the Pouch have to be removed and the Anus Sewn shut . The Diversion Colitis cannot be defeated ....in my experience and that of others. I hope to have this performed before Christmas because I really am sick and tired of the pain and hospital visits, the Flagyl which makes me puke etc... The Mucus discharge is extremely annoying. I met a Lady and we have great sex when we get together. I managed to get around the discharge problem and still have some lovely experiences after being Celibate for many years.
Your pain CAN be resolved . I use a Foam Steroid called " Colifoam" . You have to get it inside if you can or just smear it around your Anus and it will help with swelling . The swelling inside your Pelvis is cuasing your pain . I'm taking a very mild Opiate to relieve the pain and have no date ...yet ...for my removal surgery.
My fear is that I may lose the ability to have sex with this lovely Lady and satidfy her needs . However as we Irish say There's more than one way to skin a cat !!! I have other skills should my equipment be found lacking. Satisfying a woman is an art and I've been honing my skills ....just in case penetration is not on the menu . She is good with my plans and the possible side effects . Now all I have to do is get the Surgeon to get his sharpest scalpel out and go to work.
I am NOT afraid of surgery ....does not bother me at all ...I can't wait but will unfortunately will have to ...until me next attack. , will go to the ER when that happens and they can see how severe it can be.
This hospital stay was not where I will have my surgery . That hospital is in Dublin and I'm near Galway.
Thank You Eamon .