Thanks for the replies! Longroad, that IS a good idea. As Maxwell Smart would say.........."ahhhh....the old horseshoe pillow around the ostomy bag trick". I've got one of those pillows and looked at that damn thing a thousand times and never thought to use it like that.........brilliant!
Bill.....don't sweat it.........they'll keep flowing. I intend to pick this forum clean of every bit of knowledge regarding ostomies that I can find. You'll get sick of my questions long before I get tired of learning!!
I'll give you guys a little more info on how I deal with the sleep deprivation. I decided shortly after receiving my wonderful poop pouch that I wasn't going to fight the sleep issue. So instead, I've been working toward optimizing the newfound awake time I now have. Unlike you folks with plenty of bowels left, I can't stop eating at 8:00pm or so. If my short gut gets empty I lose weight. So I need to keep it busy almost all of the time. Only on the mornings when I change my bag, which is every other, do I refrain from eating while awake. On those nights I stop eating solid food around 1:00am or so, but never eat past 2:30am. My intestines will empty and I'll get a good 1/4 bag of bile right around 8:00am, at which time I take my motility meds and have roughly one hour to jump in the pool, shower and change my bag. If I can't get that done then I have to wait for my second shot of bile, then have another hour-ish to get-er-done. But my bowels would have now not seen any food to digest in more than 2 hours and I'm making bile......so I'm losing weight. So no sleeping late for me.
So back to optimizing......I try not to sit around watching TV. It's on in the background while I'm doing stuff. I've got a million projects going......I just bought an old Tiger Oak Sideboard, circa 1916, that I'm going to refinish, as well as a bunch of projects in-work. So I hit a few of my projects until around midnight. Then I do sit down to catch up on the news. I usually nod off for just and hour or so around 1:00am and then I start my hour of rehydration. By then it's 3:00am so I work the projects for another hour or so (until my output slows to where I trust no flooding will occur) and then climb into bed for 3 or 3 1/2 hours of wonderful non-REM sleep. The alarm screams at 7:30am and I want to kill someone. But I get up, mumble something like "do you want to go out" to the pooch and she pulls me up and down the block. Then I put her inside, jump in the pool and WAKE UP. People say you need 8 hours of sleep. Nah, I'd say 8 hours of sleep is a pure luxury, one which I'm can no longer afforded. But I do get a lot of stuff done! The way I look at it everyone else is sleeping 1/3 of their life away.........but not me....I'm getting by sleeping 1/5 or less of my life. Just not by choice. Maybe freedom of choice is over-rated.....but probably not.
I'm thinking of designing an Ostomy Bed. It'll have a big hole in the middle of the mattress with a collection drain under it. Just pop your bag off and go to sleep! Just don't tell the cleaning lady it's part of her daily duty to empty the pan!
C'mon Bill..........I've just given you some great words to make rhyme.........Maxwell Smart, horseshoe, deprivation, rehydration, Ostomy Bed, etc. Whip us up something relevant that pertains to sleep......or lack thereof!