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Ostomy Nurse Rocks!

Thu Nov 28, 2019 2:12 pm

I had written earlier about needing to change my bag style due to upcomming left hand LRTI surgery.  I contacted my Ostomy nurse that I had at the hospital and he was very helpful!  He helped me to calculate about how many of the closed bags I would need and the type number.  We also figured in some extras incase of emergency.  I reported what I needed to my VA provider and they will be ordering them shortly.  All I can say is that if you ever need anything in regards to your ostomy, your ostomy nurse is the best place to go.  Thank you also everyone from the site who offered advise.  It was greatly appreciated.

These are the top 5 issues ostomates face:

1. Dating and relationships
2. Concealing the pouch
3. Foods to eat and avoid
4. Losing or gaining weight
5. Pouch ballooning

Check out this video from MeetAnOstoMate.
Thu Nov 28, 2019 5:26 pm

Hi freedancer,  So glad you got the help you needed.and that VA is going to order for you.

Thu Nov 28, 2019 7:40 pm

Hi freedancer,

  You're of course right.  I've dealt with more than a few ostomy nurses and have never met a bad one yet.  Seems they empathize with us a bit more than docs and wound nurses, even though they've never had to walk around all day with a shit filled water balloon stuck to their abs.  When I got my ostomy it was at a hospital about an hour and a half away from where I lived.  It turned out the ostomy nurse who took care of me only lived about 15 minutes from my house.  She was nice enough to give me her home phone and address, and told me to call or stop by anytime, no matter how small the problem.  I was very impressed by that.  I've even had ostomy nurses from competing hospitals call each other regarding my ostomy, and despite the competition they acted like a well run team and took great care of me.  So, like you, my hat's off to the ostomy nurses out there.  Job well done.

regards,

bob

Fri Nov 29, 2019 3:55 am

Hello Freedancer.  I agree entirely with you and your responders, as I have nothing but praise for the stoma nurses.

Best wishes

Bill

Sat Nov 30, 2019 9:53 pm

I think surgeons should be forced to wear an ostomy pouch for at least 24 hours with about 300ml of goo in it so they get to appreciate what their patients go through.....

 

Dave

Sat Nov 30, 2019 10:15 pm
Tickpol wrote:

I think surgeons should be forced to wear an ostomy pouch for at least 24 hours with about 300ml of goo in it so they get to appreciate what their patients go through.....

 

Dave


Ha! Ha! And then have the seal breech in the middle of the night!

Sat Nov 30, 2019 10:21 pm
Tickpol wrote:

I think surgeons should be forced to wear an ostomy pouch for at least 24 hours with about 300ml of goo in it so they get to appreciate what their patients go through.....

 

Dave


Ha! Ha!  Then have the seal breech in the middle of the night!

Thu Dec 05, 2019 8:19 am

Hi Freedancer. I was so pleased to see your post! I'm having exactly the same operation on my left hand sometime late next year (very long waiting list) and was really worried about how I would cope with my Ileostomy. My plan now, after reading the responses you had, is to try a closed two piece and then try a closed one piece. Following a double mastectomy, I've since also developed Lymphoedema in my left arm and hand too which is really having an impact on managing my stoma, so a closed bag might be the sensible way for me to go anyway. 
Good luck with your surgery xx

Thu Dec 05, 2019 10:15 am
Degurosa wrote:

Hi Freedancer. I was so pleased to see your post! I'm having exactly the same operation on my left hand sometime late next year (very long waiting list) and was really worried about how I would cope with my Ileostomy. My plan now, after reading the responses you had, is to try a closed two piece and then try a closed one piece. Following a double mastectomy, I've since also developed Lymphoedema in my left arm and hand too which is really having an impact on managing my stoma, so a closed bag might be the sensible way for me to go anyway. 
Good luck with your surgery xx


You know, I am thinking that the closed two piece would work very well for you.  I have a flat stoma that requires a convex wafer and I also like to be able to see where I place the connector piece to make sure I center it.  With a one piece, I don't think I could see it. Good luck to you with your surgery. 😊

Thu Dec 05, 2019 5:09 pm
freedancer wrote:


You know, I am thinking that the closed two piece would work very well for you.  I have a flat stoma that requires a convex wafer and I also like to be able to see where I place the connector piece to make sure I center it.  With a one piece, I don't think I could see it. Good luck to you with your surgery. 😊


I too need a convex wafer! - you're not my alter ego are you? Haha! Thanks, I'll give the two piece a go xx

Thu Dec 05, 2019 9:25 pm
Degurosa wrote:


I too need a convex wafer! - you're not my alter ego are you? Haha! Thanks, I'll give the two piece a go xx

Let me me know the pro's and cons ok? 😊

Fri Dec 06, 2019 5:43 pm
freedancer wrote:

Let me me know the pro's and cons ok? 😊


Will do 😊

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