Meet & talk to fellow OstoMates Support | Friendship | Relationships 21,280 members

Parastomal hernia and treatment

Talk to people who understand you Sign up today - for many, our community has been a life-changing experience.
Tue Jul 07, 2020 9:09 am

living with a, parastomal hernia, as anyone had treatment if what was the outcome

Tue Jul 07, 2020 2:58 pm

I have had two repairs first one did not last more than a year .. the second it has been about 16 years.. there is still a small hernia but I cannot see it .. when I was having a colonoscopy they let me know.Find a surgeon that had experience with these type of hernia repairs. The first one was the size of a catalope! It happened after I had 2 children very close together.

Tue Jul 07, 2020 11:29 pm

Hi john1947  I have not had that problem, but just wanted to wish you best. Hope you can find some answers. Stay safe

Thu Jul 09, 2020 9:22 pm

Hi there, I had two repairs within 5 years of each other, I had a mesh repair by a very qualified surgeon but come to find out if you have Chrons disease your body somewhat rejects mesh implants or foreign bodies, that is how my parastomal was repaired. I became very ill last year and the mesh had infiltrated my small intestine I was very sick, he removed all that and relocated my ostomy  to the other side, just a caution.  I was in lots of pain through this. If you can hold off, I would try and live with it if you can. My situation is different but just wanted to give you some insight, use hernia belts for ostomy if you can.

Fri Jul 10, 2020 4:12 pm

I get granulomas with absorbable stitches, so had to have an extra surgery to remove the granulomas. I  can only imagine what a mesh implant would do. My peristomal hernia is large and I have to wear a belt to function. My intestine is in the hernia. The advice I have gotten is, if I have symproms that are acute, call an ambulance and go to ER because I may need emergency surgery. The ER will give tests to decide what to do. In the meantime it is watch and wait. My best advice (which I wish someone had told me) is: Start wearing an ostomy belt when you first find out you have a tiny peristomal hernia. Don't wait until it has grown! l don't want you to be looking at what I am dealing with now. 

Wed Jul 15, 2020 2:52 pm

Mines about the size of a baseball now.  It didn't help that I gained some weight although I'm not obese.  I could just kick myself for gaining it all back; what an opportunity after losing 35 pounds when sick!  Anyway, it's getting worse.  They put in a biological mesh at surgery and another one about a year later.  Neither held.  I'm not sure what to do next.  I'll be on Medicare next year.  I have a colostomy from divirticulitus and it's pretty far down do I'm thinking plastic mesh might work without rejection.  Thoughts?

 

* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 11    
11 visitors