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I should have known better..........

Posted by w30bob, on Mon Jul 27, 2020 10:16 am

Hi Gang,

  So here I am talking about maybe extending my barrier change to 3 (or even 4) days because things are going so good in terms of no leaks or blowouts.......and guess what?  Yup........I just casually glance at my barrier this morning (after changing it yesterday) thinking everything is perfect........and there in the area where I used to have problems (on the short side where I have to cut the barrier opening right up to the max cut line)....I see  a little dark stain on the barrier bandage material right next to the plastic ring the bag mounts to.  At first I thought it's just a smudge of dirt, since I got pretty dirty yesterday cutting up fallen trees. And I almost convinced myself that's what it was.  But I came back and looked at it again, knowing my morning window to change my barrier was quickly shrinking.  Then weighing the odds that it was a leak vs just my imagination........I decided to change the barrier just to be safe.  And yup.....it was a leak.  SON OF A ***!  No obvious reason other than the ring seems to have migrated a bit away from the stoma hole I cut in my barrier......but nothing earth shattering.  So now I have to figure out if it was the repeated dunkings in the pool, me sweating my ass off in between dips in the pool...or maybe I rolled on it while I was getting my 3 hours of sleep......or totally something else.  But just as I was getting really confident that stopping the use of ostomy powder was making the adhesion of my barrier lightyears better.........Holy Cow Turds Batman.....I'm back to square one!  I was even thinking of trying a non-convex barrier to make it less visible under my shirt now that summer is here..........what was I thinking??  So lesson learned.......from now on whenever things are going good.........I'm not telling anyone.  I'm just gonna keep it to myself.  SON OF A ***......am I pissed!  Oh, think I said that already.  My bad.  What a way to start the week!  Thanks for listening..........rant over.  Got to go kick the damn dog................ERRRRR!  

 

later,

bob

 

PS  Just kidding about the pooch!  She's sitting here looking at me like "don't look at me dickhead.....you did it, not me"

 

Reply by Pirrip, on Mon Jul 27, 2020 10:31 am

                         What a game you are having Bob! I was watching a fly walk upside down on the ceiling just now. (my busy life), and I thought,

                     insects can grip so securely, why cant someone invent a material like that? One that you could switch the suction level or something,

                     and RE-USE! I guess they wouldnt sell so many bags then tho! Ah well, struggle on with high hopes!

Reply by panther, on Mon Jul 27, 2020 10:55 am

Just one of those things really that can happen they like to lead us into a false sense of security lol another time could be within 1 hour then another time could leave it on for 7 days without any problems 

Reply by w30bob, on Mon Jul 27, 2020 11:40 am
Pirrip wrote:

                         What a game you are having Bob! I was watching a fly walk upside down on the ceiling just now. (my busy life), and I thought,

                     insects can grip so securely, why cant someone invent a material like that? One that you could switch the suction level or something,

                     and RE-USE! I guess they wouldnt sell so many bags then tho! Ah well, struggle on with high hopes!


Pirrip.....you're a genius!  Yes, what we need is a flexible foam-like ring to put around our stoma and then a velcro barrier that attaches to our skin around our stoma.  The ring wouldn't have to adhere, just be flexible enough to keep contact with our skin and the barrier at all times.  I know that material exists.....I guess the challenge will be getting the velcro to stick to our skin better than it sticks to itself........otherwise it would pull off our skin every time we removed it.  But you got me thinking..................which we all know is never a good thing!  I also thought about having the plastic ring from the barrier (that the bag snaps onto) surgically implanted around the stoma.....so no need for barriers or rings.  The healing time though would be hard to deal with though.  Might need a stoma extension insert while healing, to empty into a container not glued to our bodies.  Calling Dr. Frankenstein..................

later,

bob

Reply by Pirrip, on Mon Jul 27, 2020 1:19 pm
w30bob wrote:
Pirrip wrote:

                         What a game you are having Bob! I was watching a fly walk upside down on the ceiling just now. (my busy life), and I thought,

                     insects can grip so securely, why cant someone invent a material like that? One that you could switch the suction level or something,

                     and RE-USE! I guess they wouldnt sell so many bags then tho! Ah well, struggle on with high hopes!


Pirrip.....you're a genius!  Yes, what we need is a flexible foam-like ring to put around our stoma and then a velcro barrier that attaches to our skin around our stoma.  The ring wouldn't have to adhere, just be flexible enough to keep contact with our skin and the barrier at all times.  I know that material exists.....I guess the challenge will be getting the velcro to stick to our skin better than it sticks to itself........otherwise it would pull off our skin every time we removed it.  But you got me thinking..................which we all know is never a good thing!  I also thought about having the plastic ring from the barrier (that the bag snaps onto) surgically implanted around the stoma.....so no need for barriers or rings.  The healing time though would be hard to deal with though.  Might need a stoma extension insert while healing, to empty into a container not glued to our bodies.  Calling Dr. Frankenstein..................

later,

bob

    Or..... plastic coated iron beads inserted under the skin around the stoma, and magnetic bags!

  I would love showing it at the airport! But nobody will do anything that upsets the trough.....

Reply by w30bob, on Mon Jul 27, 2020 9:12 pm
Pirrip wrote:
w30bob wrote:
Pirrip wrote:

                         What a game you are having Bob! I was watching a fly walk upside down on the ceiling just now. (my busy life), and I thought,

                     insects can grip so securely, why cant someone invent a material like that? One that you could switch the suction level or something,

                     and RE-USE! I guess they wouldnt sell so many bags then tho! Ah well, struggle on with high hopes!


Pirrip.....you're a genius!  Yes, what we need is a flexible foam-like ring to put around our stoma and then a velcro barrier that attaches to our skin around our stoma.  The ring wouldn't have to adhere, just be flexible enough to keep contact with our skin and the barrier at all times.  I know that material exists.....I guess the challenge will be getting the velcro to stick to our skin better than it sticks to itself........otherwise it would pull off our skin every time we removed it.  But you got me thinking..................which we all know is never a good thing!  I also thought about having the plastic ring from the barrier (that the bag snaps onto) surgically implanted around the stoma.....so no need for barriers or rings.  The healing time though would be hard to deal with though.  Might need a stoma extension insert while healing, to empty into a container not glued to our bodies.  Calling Dr. Frankenstein..................

later,

bob

    Or..... plastic coated iron beads inserted under the skin around the stoma, and magnetic bags!

  I would love showing it at the airport! But nobody will do anything that upsets the trough.....

Pirrip..........you're on a roll, Brother!  Now I'm thinking about refrigerator magnets superglued to my skin around my stoma and the same magnets inside the barrier connection on the bag.  Son, you are just a treasure trove of great ideas!  

As for your original idea........with the knucklehead Docs I've dealt with in the past they'd insist on stainless steel balls rather than plastic coated steel.........and only AFTER the surgery would they come to realize stainless isn't magnetic!  Keep the good ideas comin'.........one of 'em is going to work!

 

regards,

bob

Reply by Puppyluv56, on Tue Jul 28, 2020 7:49 am

Bob,

Don't give up Bob. You could've had a leak with your stoma powder after all of that you put your appliance through on that day, sweating and swimming in the pool and more sweating in the heat and swimming in the pool. That's enough to take any barrier off even with superglue.

Maybe you just need an additional barrier strip, like the Y shape Coloblast or Convetec half circle barriers as added protection on those days that you're going to put it through hell.

pup

Reply by Old Bud, on Tue Aug 04, 2020 4:21 pm

I could have a different setup. I have an ileostomy a few months ago. I left the hospital with an accordion flange and bag. When I got home I would have leaks every night just before bed. Damn, not a good time. After a few weeks of frustration, one stoma nurse tried me on a convex flange that you mold to the shape of the stoma with your thumbs. No cutting. She didn't use any other barrier or Ekin. Very simple. Clean the area and stick it on. I haven't had a leak since. We can shape the flange to the exact size of the oblong stoma. Very happy with the convex flange. Good Luck.

Reply by ron in mich, on Sat Aug 08, 2020 9:38 am

Hi all i,ve often thought that maybe a thin silicone type washer with the hole the exact size of my stoma lightly glued to the skin and the wafer over that so when the edge of the wafer starts eroding you wouldnt have to change it right away.

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