Her name was Wendy but I called her Heaven. She liked that. Her green eyes would light up and I would see the light of a perfect future shining out, washing over me, caressing me. Everything about her oval face was the way it ought to be: her small, slightly freckled nose turned up slightly, and her lips – what can I say about those lips? “Don’t tell your parents that I call you Heaven, okay? They might think I’m some kind of weirdo.” I could see that she understood completely. After a couple of dates, we started making out. I couldn’t believe what a good kisser she was. Soon it progressed to more advanced exploration. This is real love, I thought. I was beginning to get carried away. I forgot about my ostomy completely which, in retrospect, amazes me. Love can turn a person upside down. Our hands were exploring each other. I felt her fingers go down inside my shorts. “What’s this?” she exclaimed, pulling her hand away. My heart missed a beat. I tried to tell her what it was. “Eww,” she wheezed. My Heaven had turned to Hell. But all was not lost. The following month, I met the girl I’d marry. We just celebrated anniversary number fifty-two. Now that’s Heaven.
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
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Hollister
In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.


