I have had some complications with severe stomach pain. I was recently admitted to the hospital for pain control. Imaging shows that there are fluid pockets that press on other organs. I am curious as to if I am the only one that has experienced this issue? I was told at first that it was a gynecology issue and that I have large cysts on my ovaries. The gynecologist says that is not what the other doctors think it is. I was then told that the scar tissue from multiple surgeries provides the "pockets of fluid" because there is no place for the fluid to move and cannot be reabsorbed as it would do with a "normal" person. The way they remove the fluid is with an interventional radiologist, and they aspirate the fluid with insertion of a long needle and suction it out. There has been a liter or more of fluid each time. I have had this 3 times in a year. This last time was the most painful experience in a while. The hospital assigned a gynecologist to oversee my care in the hospital. I have had cysts in the past, and the imaging didn't show a cyst; it was described as pockets of fluid causing massive pressure to my uterus and intestines. Instead of doing a laparoscopy to have a look-see, they tell me I just have to get the fluid removed as needed. If this is not a normal thing for other ileostomy patients and there was no ovarian cyst, then what is happening?

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Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
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Learn how to care for your loved one, while still taking care of yourself.
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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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