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Oversize ostomy bag and airline toilets

Sat Feb 13, 2021 1:09 pm
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Hi,

 

I expect to travel for my work, soon, from California to Europe, Egypt, Saudi Arabia, Guam, Japan and South Korea.

 

I will fill up a regular bag on those long flights and can't see how I and my helper can fit into an airline bathroom without making a mess.

 

Any ideas?

 

Thanks,

Rod

 

 



Last edited by knobby on Sat Feb 13, 2021 2:02 pm; edited 1 time in total
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Sat Feb 13, 2021 1:35 pm

Hi Rod,

 Contact the airlines and explain your condition.  I think you'll find they try to be more than accomodating........or at least they used to.  

 

regards,

bob

Sat Feb 13, 2021 2:01 pm
w30bob wrote:

Hi Rod,

 Contact the airlines and explain your condition.  I think you'll find they try to be more than accomodating........or at least they used to.  

 

regards,

bob


Thank you, Bob. I was discussing this with my travel agent and he said all wide-body commercial aircraft that fly into the USA must have at least 1 "accessible" toilet. So, I guess it depends on the meaning of accessible.

 

Sat Feb 13, 2021 2:25 pm

Knobby, 

I fly often but my trios of late with my bag has typically been no more than a 6-7 hr flight . I do call the airlines and tsa due to I go thru security not only with my meds but with my stomach powder , aerosol can of remover, scissors, my own 6 pack of water open due to I add extra electrolytes in my water and my own food from home . I get thu security as my ticket is tagged.  The stewardess is informed of my condition and I'm able to use the bigger( not by much) first class bathroom. Even if we have turbulence,I am permitted to get up and use it . I kneel down on my own paper mat I bring to ease the burden to empty . 
I suggest to contact tsa and your airline to flag your ticket ...Have a great time on your trip, Exciting !    Ritz

( I'm flying next month again !) 

Sat Feb 13, 2021 2:35 pm
Ritz wrote:

Knobby, 

I fly often but my trios of late with my bag has typically been no more than a 6-7 hr flight . I do call the airlines and tsa due to I go thru security not only with my meds but with my stomach powder , aerosol can of remover, scissors, my own 6 pack of water open due to I add extra electrolytes in my water and my own food from home . I get thu security as my ticket is tagged.  The stewardess is informed of my condition and I'm able to use the bigger( not by much) first class bathroom. Even if we have turbulence,I am permitted to get up and use it . I kneel down on my own paper mat I bring to ease the burden to empty . 
I suggest to contact tsa and your airline to flag your ticket ...Have a great time on your trip, Exciting !    Ritz

( I'm flying next month again !) 


Ritz,

 

That is great in fo. I'm gonna pass it along to my travel agent and the supplies you bring I'll share with my wife.

 

Thank you,

Rod

Sat Feb 13, 2021 3:00 pm

Rod,

Do you have a colostomy or ileostomy?  If you have a colostomy your answer is irrigation.  I can go long periods, up to 24 hours without output.  It's easy peasy flying then!

Shannon

Sat Feb 13, 2021 3:09 pm
charleston_sunny wrote:

Rod,

Do you have a colostomy or ileostomy?  If you have a colostomy your answer is irrigation.  I can go long periods, up to 24 hours without output.  It's easy peasy flying then!

Shannon


Shannon,

I too can go that long - however, I never know when that will be. Some days it's several times a day. And other days you wonder if you're constipated.

I have a colostomy.

 

Thanks,

Rod

Sat Feb 13, 2021 4:03 pm

The helper is another person that helps you with your bathroom needs? Maybe find the dimensions of the bathrooms that you have access to on the airline. To see if both of you can fit. But get as close as possible to the toilet and use an extra large/long bags ..this decreases splashes and empty more often. 

Sat Feb 13, 2021 4:19 pm
Maried wrote:

The helper is another person that helps you with your bathroom needs? Maybe find the dimensions of the bathrooms that you have access to on the airline. To see if both of you can fit. But get as close as possible to the toilet and use an extra large/long bags ..this decreases splashes and empty more often. 

Hi Maried,

Not sure why I used the word "helper." My wife is my helper, but has said she's not going on those long trips. If she doesn't go (and she does everything for me) then I may have to find a helper.

 

Thank you,

Rod

Sat Feb 13, 2021 4:25 pm
knobby wrote:


Ritz,

 

That is great in fo. I'm gonna pass it along to my travel agent and the supplies you bring I'll share with my wife.

 

Thank you,

Rod


I read some others comments. I have an ileostomy which requires emptying every 2 hrs if not sooner. All depends. Ritz

Sat Feb 13, 2021 4:42 pm
Ritz wrote:


I read some others comments. I have an ileostomy which requires emptying every 2 hrs if not sooner. All depends. Ritz


OMG, I'd hate that. Sometimes I empty and before I leave the bathroom, I get just enough to say "ok, empty now." That happens once in a while, but it also happened where I went, finished and went went again and then a 3rd time. But typically I may go 2 or 3 times a day and sometimes not for 24 or more hours. like you wrote, "all depends."

Rod

Sat Feb 13, 2021 5:19 pm
knobby wrote:


OMG, I'd hate that. Sometimes I empty and before I leave the bathroom, I get just enough to say "ok, empty now." That happens once in a while, but it also happened where I went, finished and went went again and then a 3rd time. But typically I may go 2 or 3 times a day and sometimes not for 24 or more hours. like you wrote, "all depends."

Rod


LOL ... I got used to it , I'm just happy to be strong and alive . I'm healthier now than I've ever been , ayatollah least I don't fart !!!

have a great trip ... the bathroom in the plane will work out just fine ,    ritz 

Sat Feb 13, 2021 7:16 pm

Hi Rod,

  I think what they're saying is by irrigating you'll be gaining some consistency in when you have output.  I'm not in that camp, but I thought that was the whole point to irrigating.  You basically flush your bowels to restart the clock, so to speak, so you have a good idea of when the window closes.  I'm sure the irrigators will chime in if I'm off the mark, or simply don't understand the concept.  I'll be quiet now.........

 

;0)

bob

Sat Feb 13, 2021 8:01 pm
w30bob wrote:

Hi Rod,

  I think what they're saying is by irrigating you'll be gaining some consistency in when you have output.  I'm not in that camp, but I thought that was the whole point to irrigating.  You basically flush your bowels to restart the clock, so to speak, so you have a good idea of when the window closes.  I'm sure the irrigators will chime in if I'm off the mark, or simply don't understand the concept.  I'll be quiet now.........

 

;0)

bob


Spot on Bob!  Rob, a lot of us irrigators can go 24 hours or more without output.  I irrigate every morning and have lots of success with it.  If you don't irrigate, you should look into it.  It's a game changer!

Sat Feb 13, 2021 8:33 pm

If you decide to irrigate be careful of the water .. if you cannot drink the water straight from the faucet do not use it for irrigation.. use bottled water. I irrigated for 10 years and when I traveled to a new time zone irrigation did not work for me.

Maybe others had success and setting up an irrigation bottle/hose and the sleeve (are these same items used)and needing a chair in a hotel room was hard!!! The total process took 45 minutes to an 1 hour so after I had children I stopped.

I now just regulate the poop by eating small meals  if I am working out side my home or traveling.

 Did you just consider just putting on a new bag when the old is filled while traveling on the plane ?since you have a colostomy it usually stops soon after eating.

Sat Feb 13, 2021 10:03 pm
Maried wrote:

If you decide to irrigate be careful of the water .. if you cannot drink the water straight from the faucet do not use it for irrigation.. use bottled water. I irrigated for 10 years and when I traveled to a new time zone irrigation did not work for me.

Maybe others had success and setting up an irrigation bottle/hose and the sleeve (are these same items used)and needing a chair in a hotel room was hard!!! The total process took 45 minutes to an 1 hour so after I had children I stopped.

I now just regulate the poop by eating small meals  if I am working out side my home or traveling.

 Did you just consider just putting on a new bag when the old is filled while traveling on the plane ?since you have a colostomy it usually stops soon after eating.


Hi again Maried,

 

Thanks for all the tips. 

I have not noticed any relationship between when I eat and when I poop. I hear you about carrying bottled water and will do that.

You and one other member used the word "irrigation," what does that mean in relationship to an ostomy bag?

Thanks,
Rod

Sat Feb 13, 2021 10:54 pm

There are some good Videos online that show how to  irrigate. I have not tried it but from what I read it takes time to train the bowels. I am sure others can tell you more . Best wishes and stay safe

Sat Feb 13, 2021 11:08 pm
lovely wrote:

There are some good Videos online that show how to  irrigate. I have not tried it but from what I read it takes time to train the bowels. I am sure others can tell you more . Best wishes and stay safe


Thank you Lovely - I'll look into that.

Sun Feb 14, 2021 12:54 am

Please speak with an Ostomy nurse about irrigation he or she will help guide you thru the process but as Lovely said check the internet or this site for details on the process. The process cleans out your bowels for at least 24 hours so you have no or little bowel movement. .. it is an enema going thru your stoma opening.

 

Sun Feb 14, 2021 4:20 am
Maried wrote:

Please speak with an Ostomy nurse about irrigation he or she will help guide you thru the process but as Lovely said check the internet or this site for details on the process. The process cleans out your bowels for at least 24 hours so you have no or little bowel movement. .. it is an enema going thru your stoma opening.

 


Thank you Maried. I wasn't clear before. But now I understand what it does.

Thanks again,

Rod

 

Sun Feb 14, 2021 8:55 am

Irrigation is certainly a game changer. I irrigate every other day and most times have not output in between. I use a two piece Convetec closed pouch system so if I do have output, I can just pop the pouch off Into a black baggie I buy on Amazon and throw in the trash. Takes just a second to pop off, wipe up a little, and pop a new on back on. 

Certainly look at the process on UTube.you are training your Colin to empty at a specific time. It is not tough but certainly check with your Ostomy nurse. Sometime they like to help you the first time. 

Good luck, 

Puppyluv

Sun Feb 14, 2021 11:50 am
Puppyluv56 wrote:

Irrigation is certainly a game changer. I irrigate every other day and most times have not output in between. I use a two piece Convetec closed pouch system so if I do have output, I can just pop the pouch off Into a black baggie I buy on Amazon and throw in the trash. Takes just a second to pop off, wipe up a little, and pop a new on back on. 

Certainly look at the process on UTube.you are training your Colin to empty at a specific time. It is not tough but certainly check with your Ostomy nurse. Sometime they like to help you the first time. 

Good luck, 

Puppyluv


Thank you Puppyluv56 - seems like that's what a lot of ostomy wearers use.

 

Take care,

Rod

Sun Feb 14, 2021 5:14 pm
knobby wrote:


Thank you Puppyluv56 - seems like that's what a lot of ostomy wearers use.

 

Take care,

Rod


Yes Rod,

Those with Colostomies only. It takes a while in the morning but take all the work out of it for the remainder of the time between irrigation days. Takes all the worry out of it as well. 
Pup

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