My name is Mike, 34, and I have recently joined the Ostomy Forum. I have had my permanent ileostomy now for a few years due to Ulcerative Colitis and a failed internal pouch. Ever since my surgery, I have always had problems with extreme fatigue and tiredness, lack of motivation, dry eyes, and dry mouth. To control my output, I am currently taking Loperamide (10mg) and Omeprazole (80mg) on a daily basis. I empty the pouch on average 5-6 times a day and most of the time once at night. I am quite careful about what I eat.
According to my consultant, my blood tests do not show that I am dehydrated (although I wonder if I am) and do not show that I am lacking in my key vitamins and minerals. I do take a multivitamin supplement once a day.
What I would like to know is if anyone else has suffered from extreme fatigue/tiredness since ileostomy surgery and how they combatted this? This is a huge problem for me as I used to be very active and have had to rein in my exercise quite rapidly. I also used to sing in a choir but have not done this for a while due to problems with dry mouth. I have read various articles that having a stoma has given people their life back but for me, this hasn't been the case at all. I really just want to feel fit and healthy again and have a good social life once more, something of which I do not have at present. I feel that these issues are really holding me back from the life I want to live.
Any advice would be greatly appreciated.