It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency, and urgency issues - all of which go away. I've learned differently. Especially with an ultra low anastomosis like mine (2.5 cm), the symptoms will likely never go away and, even if they do, it takes years to achieve even a small amount of progress. I'm 64 and don't want to take that time. As soon as I can, I'm booking surgery for a permanent colostomy which will give me back my freedom. No poopy pants and no pain!

Past Member
Nov 27, 2022 6:17 pm

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First off, this is a pretty cool site with 40,194 members.
But, it's not all about ostomy. We talk about everything.
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Hollister
Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.
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Hollister
Talking about having an ostomy can be uncomfortable for most people. Still, it's something you can't always avoid.
Learn about some strategies that can make it easier to talk about your stoma.
Learn about some strategies that can make it easier to talk about your stoma.