It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency, and urgency issues - all of which go away. I've learned differently. Especially with an ultra low anastomosis like mine (2.5 cm), the symptoms will likely never go away and, even if they do, it takes years to achieve even a small amount of progress. I'm 64 and don't want to take that time. As soon as I can, I'm booking surgery for a permanent colostomy which will give me back my freedom. No poopy pants and no pain!
Past Member
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,465 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
Your stoma doesn't have to get in the way of sampling local cuisine and activities when you're on vacation.
Check out our travel tips on diet and fitness.
Check out our travel tips on diet and fitness.
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Hollister
Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.