It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency and urgency issues - all of which go away. I've learned differently. Especially with an ultra low anastomosis like mine (2.5 cm) the symptoms will likely never go away and, even if they do, it takes years to achieve even a small amount of progress. I'm 64 and don't want to take that time. As soon as I can I'm booking surgery for a permanent colostomy which will give me back my freedom. No poopy pants and no pain!
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