I for one think you have made the right decison , and I wish you much happiness with your newfound health..........Enjoy it and go run with it............My journey was very similar and I too am completely happy with my permanent osotmy decision.........Michael
There are people out there that dont have the option to get there stoma reversed if you have the option go for it. My doctor told me 1 third of people that get the reversal will need a bag within ten years 1 third of them will cope with having a jpouch and 1 third of people will be very happy wit there pouch.
Hope this shines a bit of light on your situation if you'd like to no anymore jus ask, and remember you'll always hear about more unsuccessful jpouch procedures because the ones that are successful like myself dont be online as much
Just a few points about reconnects to those considering it .... be certain you have a surgeon that is highly skilled in this specialty ( not a general surgeon ) and make sure you know why you want to reconnect.... if your doubtfull take a year or so to evaluate living with the ostomy... consider the lifestyle you expect to live....and don,t be presured by the doctors to move swiftly if you have reservations... unless there is a disease realted reason for doing so. Best of luck to all.
Have you seen the videos done by this young fellow? Very imformative. He covers many issues and is very straightforward.
All the best with your decision.
The success of the J pouch is very dependent of why you had to have your colon removed.
What ever you decide, needs to be based on accurate information about your particular situation.
I don't know if your doctor is a general internal surgeon or what, you don't mention it.
You need the advice from a doctor that has done many of the J pouch procedures.
You need to educate yourself to ask the right questions.
Is the J pouch to be connected to your anus. Or do you have a rectal cuff left to connect to.
What problem did you have U/C, Crohns, cancer, colonic inertia. You need to know exactly.
Do your own research.
Frankly, the fellow that made the U-tube video, I to some extent doubt some of what he says. I am a J poucher, going on two years.
One more point, true in most cases laproscopic surgery leaves much less scare. However the success rate is better for open surgery and there is less chance for a mistake.
I had a J pouch for 13 years, following an emergency colectomy for UC. The J pouch failed and unfortunately the surgeon was unable to redo it and I ended up with a permanent ileostomy. I had that for a year and was then given a Koch pouch, which is a continent ileostomy. I am really happy with this and completely well. I do not have to wear a bag and empty the pouch 3 times a day with a catheter. The K pouch is not an option if you have Crohn's disease, though.
I wish you well and hope that with the help of others, who have been in a similar situation , you can make an informed decision.
I just had my reversal done in May of this year. I too had an iliostomy than the j-pouch and had so many complications that I choose to have the permanent iliostomy done. Although there are few ticks it has been the best thing for me. I have put on healthy weight; I am able to go out and enjoy an evening without spending most of my time in the ladies room... Other than the odd leakage I have no problems at all Most people don't even realize that I have a colostomy bag on my abdomen...I hope this helps..
After 22 years of Ulcerative Colitis I had my colon removed, j-pouch created, and temp ileo back in Aug '06. Had my take down in Dec '06. Never got better. It was like I still had colitis. Shortly after takedown I was rediagnosed with Crohn's and severe chronic pouchitis. After 2 1/2 years of constant problems and lack of pain control I had my j-pouch disconnected and went to a end ileo. What a differance! I got my life back. I take one Humira shot per week. No pills, I can eat whatever I want, and no more pain! The trade off of the end ileo was a small price to pay for getting my life back. Best of luck to you...
Your situation is very much the same as mine... I had the take down in May 2010 and I too have a much better quality of life.. I can eat anything and feel great. After my reversal to a j-pouch I was sooo sick I had an abdominal infection for 3 years and anything I ate just came out the other way.. finally I did make a huge decision to take down the j-pouch and as I mentioned earlier best thing ever.... But snowflake every case is different I've read stories here on this wonderful site about success stories the only person who knows is you and your surgeon. All the best
My doctor is considering giving me Humera as I am unable to take NSAIDs anymroe for my (I think) j pouch caused arthritis...my sister, who knows a lot about medicine , is just railing at me for consider a drug that she THINKS is very dangerous...I read a lot about ppl who have j pouches and ostomies using Humera.....I just wondered what your experience is with it. The arthritis is unbearable! Thanks ;)
I am new to this org. I am here for my mother . She is 63 yr old . She is undergoing her chemo for endometrium ca. She underwent with total colectomy end ileostomy. Is there any chances of her reversal to j pouch ?