Life as a Wheelchair User: Seeking Connection and Sharing Experiences

Slept until 0300hrs, because my DSW puts me to bed each night at 1830hrs and I watch a bit of TV or wait for Bubbles to get active, but all was quiet last night. That means plenty of preparation today to avoid a blockade, must not wait longer than 48hrs to get my colostomy pouch changed. When you're wheelchair-dependent, your body is slack and needs daily stimulation and laxatives. Would love to find someone in a similar position to share life events. Looking forward to going to the cinemas and seeing a movie which makes me laugh and feel relaxed. Bummer that no one is around to enjoy it with me. Will check online later this morning what's playing, feeling romantic at heart today. Just watched GMA and now it's GMAustralia. Will have some fruits for breakfast and a small thermos of coffee, which gets prepared each evening for me. My life is pretty organized by my DSW (Disability Support Worker); hopefully, if I'm lucky, I may meet someone interested here one time who looks past all my shortcomings. To my Melbourne ostomates, a good morning and to all of you over the miles, a good sleep or late afternoon, whatever applies.

What's this 24-hour clock deal, Schnecker? Were you in the army or what, 1800 hrs, yes I'm too lazy to count 6 pm? Cheers... Getting cold here in Melbourne. I don't like winter; it's a mood change for me. Brr brr brrrr.

Well, I don't like winter much either, but can't you put the heater on? If you have to go outside, put the winter woolies on. Just for you, Mooza, it is now 2:45 am and no army, but I grew up in a convent. Haha!!! Must say, I love your dry humour... You are invited to join me in my warm, comfy unit. Anyhow, "Schnecke" means snail in German. My ex-boyfriend calls me that because I'm so slow. By the way, the 24-hour times are here to stay. Hope you are nicely warm under your blankets tonight, because last night Arthur, my SPC, soaked my cosy bed completely... What a mess! Thank God for the DSWs, the ones who made all anew. Sweet dreams until we share again xx

Oh, so you're from Germany? How long have you been in Australia? Schnell, schnell, where is the hound? LOL

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

Darling, I am 42 years here and am a dinky Aussie by now. Bubbles is keeping me busy tonight; had already 2 changes. LOL, honey bun, for now, keep up your cheese comments. Nighty-night xxxooo

Oh, real dinky-di Aussie you are. Cheesy comments? LOL. MATEEEEEEEEEEEEEEEEE hahahah. Have you thought about changing your osty appliances? Not good, Bubles, having those tantrums now!! :D

I have changed the appliances many times, but I have just the use of the left hand and it's difficult, but never complicated, thanks Mate... lol

Oh, by the way, can they irrigate your ostomy? That might benefit you big time. I know a few ladies and gents who irrigate, and they don't have as much to worry about. Hmm, just a thought, or have you been there, done that? And yes, I have the heater on. I just like to see the sun out, especially in the mornings; it makes me feel sunny and happy. I love to jump out of bed and go outside with no shoes. Sorry, all I know about SPC is the tinned spaghetti for hungry little human beings. :) Take care, sweet lady. :D

Hi Mooza, I would like to explain to you what SPC stands for; forget the apples and apricots, my dear. It goes this way: SUPRA PUBIC CATHETER!!! Haha, lol.

Never eat spaghetti from SPC in the tin; only use their fruits. How are you today or anyone's past? Hope life treats you well. Smile, you're on Candid Camera. Will write another forum or blog; really don't know what is much of a muchness. Do you? Please, please tell me.

I wished my typing would be better, too many fingers sliding along at the same time and it all looks pretty bad once I press submit.

To your question, if I can irrigate... I don't think so, because I need a nurse to help or get admitted to the hospital. At the moment, Bubbles behaves reasonably. I get an output every 2nd or 3rd night, but must take Movicol twice a day plus lactulose and pear juice concentrate. - LOL Babe xo

Oh, I see! You can't irrigate; that's a real bummer, hey!!! Not sure I have heard of those tables, darls, :) and no, I haven't had a good day :( My dog and I decided to both walk into the kitchen, but he was in another lounge room. I thought my niece put him out, but noooo, so now I'm 3 months post-op from hernia repairs. I fell right over him. UGHHH, I have been in pain for 2 weeks. I think I have torn something; also, my abdomen is worse than a Melways :((((( I'm off to Cabrini for an ultrasound or whatever that's called. Too bad the only one who operates on me decided to leave cold Melbourne behind and is in New York and then Europe for 3 months. UGHHHH, I can't get a break here. The bloody dog is staying out all night now. I have done something to my 2 hernia repairs; it doesn't feel normal at all. It's burning to the point of cramping. Okay, it's 12:30 AM here, lol. XX CHOW 4 NOW SHNELLLLLLLLLL XX. BTW, we do have a heater too, LOL. Thanks, Mooza xx

Hi honey, always smile and laugh when I get a reply from you, though your tummy gives you heaps of grief. Wish I could make it better; your life has so many stones to roll away. Stupid hernia... hope they fix you good and proper after the ultrasound! Keep in touch. Much love and hugs, hopefully the pain will get better. xxoo Cheers