Day and Night Survival Tips: Radio, Drinks, and Sleep Hacks!

Replies
21
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1100
Panko
Dec 31, 2021 4:03 am

A day leak-free?

Favorite internet radio station?

"Mi Soul" app, 3 stations in one: Mi Soul,

Mi Groove & Mi House. You will be hooked,

I promise!

Night - large brandy & port with a slice of lemon & a block of ice!

Medicinal.

Sleep - an hour before midnight is worth 2 after!

Hair dryer! Warm up your skin & bag before & after fitting to the skin & you will have much fewer leaks! Big game changer!

Another idea I tried which works is to buy a wheat bag you heat up in the microwave & put it over the bag to heat the seal up. I use it in my Moho.

I got a long bolster pillow about 4 feet long for my bed & when I do go to bed, I put it parallel to my body & "tree hug" it with one arm & leg over it on my side. Great if you sleep alone & only have one bag, but trickier with 2. So I sleep on my colostomy side as I rarely have output in the night & get a much deeper sleep than on your back!

Caz67
Dec 31, 2021 9:19 am

Hi Panko
What gets me through the day and night? I have to say it's got to be my dog. Crazy as hell when he comes back from his walks. Runs from sofa to sofa for a few minutes then stops and when he looks at you his eyes have the home and away look lol. Never a dull moment. Cuppa and midget gems got to be lions though. XX

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Panko
Dec 31, 2021 10:38 am

Yes, you can't beat unconditional love from an animal, especially a dog. I babysit my sister's dog more often than not and miss him when he goes. It gets me thinking to get a smallish dog, a friend for life. My niece and her partner run a boarding kennels and take in Alsatians from a rescue home nearby. They have had a beautiful one called Cody for over a year. I would love him, but he's a big dog. However, he is well trained. My niece had a black and tan one from a pup called Ava. They play lovely together.

Panko
Dec 31, 2021 10:44 am

I almost forgot last time I was in the hospital, having a tumor removed from my left lung in February. A guy next to me, in his 70s, was a double bagger. He would not stick his bags on without using a hair dryer first to warm up his skin and the bag simultaneously so they stick better! Well, he made such a fuss of it that it gave me the idea to try when I got home?
Well, I must say it is a big game changer. It really works. I have had a lot fewer leaks since using a hair dryer. Run it around the seal after to push down spots that pucker up! Tip for the day!

Caz67
Dec 31, 2021 8:22 pm

Hi Panko.
I've been doing this for the last few months and it's definitely leading to a better seal, which is a win-win. Thanks for the tip. I used to have an Alsatian, got her from PDSA. She was a beauty and a very big softie, lol ????. I have a Shih Tzu now, pure black, but I always have him cut short. Xx

 
How to Manage Ostomy Leaks with LeeAnne Hayden | Hollister
TerryLT
Dec 31, 2021 8:48 pm

Hey Panko and Caz, the hairdryer tip was a game changer for me too. I make sure my peri-stomal skin is really dry and then run the hairdryer around the flange for around 30 seconds. Haven't had a leak since (fingers crossed) and my wear time has increased big time. I only change every six days, which is really good for an ileo.

Nothing better than having a dog. Wish we still did. Losing our last pup was very painful, and not sure when or if we will be ready for another. We walk our neighborhood every day and know all the names of the dogs who live along the way. We always have treats. No idea what any of their humans' names are!!

Terry

Caz67
Dec 31, 2021 9:01 pm

Hi Terry
Funny how I am the same, know other people's dogs' names but not got any ideas of the owners' lol ????. Sorry about you losing your dog. At the end of the day, they are our babies, always happy to see you and never shout or abuse you. Unconditional love XX ??

Panko
Dec 31, 2021 10:21 pm

When you say you can wear a bag for 5/6 days without a change, does that mean you are wearing a two-piece bag with a base plate? As I heard, you can wear them longer. I can't imagine wearing a bag for more than two days at most. Maybe I'm missing something? I did try one once with a base plate but found it not as clean as changing daily or every other day, as cleaning the seal was a bummer!

TerryLT
Dec 31, 2021 10:43 pm

I wear a Hollister one-piece, the product number is #8958, and it's the best appliance I've ever used. As long as I get a good seal, super dry skin, cut the hole well, and prepare the flange with the hairdryer, it stays put. I change, for instance, I'm changing it today, then won't change again until next Thursday. I shower daily and clean the outside of the pouch with soap and water so I always feel clean. I used to use a two-piece but didn't get as good a seal, even though it was also a Hollister, the flange was different. I also had leaks occasionally around the seal and even had the top piece come off a couple of times during the night, ugh, not fun. The Coloplast pouches just don't work for me, can't get them to stay on for more than a couple of days. Everyone is different and what works for one person will be a big fail for others. It's good to try lots of different products.



Terry

Panko
Jan 01, 2022 2:11 am

Hi Terry, I have recently changed to Hollister bags from Coloplast. They seal much better even though the flange is smaller on my urostomy stoma.
I also use another bag for my colostomy made by Dansac, a Swedish company owned by Hollister, which I've just changed to from Salts bags. They were great but small.
Nice to hear peeps use the Haitian dryer method for drying skin. Wish I had heard of it years ago!
Happy New Year!

TerryLT
Jan 01, 2022 9:37 pm

Hi Panko, another thing I should mention is that I think has improved my wear time. After applying the new pouch, I hold it firmly in place, covering it with my hand so that I'm applying even pressure all around the flange, and keep holding it in place for around 90 seconds. I used to just hold it in place for a few seconds and that may have not been enough. The extra time is worth it. I also didn't mention that the pouch I use, the #8958, has a soft convex wafer which has also made a big difference from the flat wafers. They are just as comfortable as the flat ones and more comfortable than the hard convex. Good luck and happy New Year to you too!

Terry

Panko
Jan 03, 2022 12:46 am

Hi Terry, are your bags vented or unvented?

Panko
Jan 05, 2022 9:20 am

Always say a little prayer, be thankful at the end of the day. Wake up in a good spirit of cheer normally.
If it's sunny, then that's a bonus. By the time you've had coffee, brekky, showered, then changed your bags.
There's no time for depression or self-pity, so just get on with the day and what it beholds?

TerryLT
Jan 05, 2022 9:19 pm

Hi Panko, my bags are vented, but it's only because you can't get that particular bag without a vent. I cover the vent with one of those little stickers, so it doesn't work. I've never liked vents because they tend to make the bag suck in against the stoma and make it more difficult for output to slide down to the bottom. If I have gas build up, I just "burp" my bag.

Panko
Jan 07, 2022 2:18 am

Hi delgrl, I often wondered what those little sticky round tabs were for?
I actually thought they were to remind you that you've had your bag on for more than a day? (What a donut)!
Well now I know, I will try your tip. Sounds like a good idea to stop pancaking!
As for burping, great idea. Being a plumber, it makes sense as you are venting your own system!
Thanks again for the great tip. As my prolapsed stoma inflates and deflates all day, this could be a way of keeping it smaller.
Instead of women saying "Is that a gun in your pocket or are you just pleased to see me?" ????

Caz67
Jan 07, 2022 9:16 am

Hi Terry/panko
I only found out about the event about a month ago too. Better late than never, right? XX

TerryLT
Jan 07, 2022 9:16 pm

So glad I could help out! It's what this site is all about, isn't it great!?



Terry

Panko
Jan 08, 2022 3:07 am

Got any other tips being a veteran and all that?
Have you thought about going black instead of pink bags as they blend in more with darker clothing?
As they say, once you've had black, no turning back as black don't crack!

TerryLT
Jan 08, 2022 8:57 pm

You are a hoot, Panko! Not sure about the black bags for me, wouldn't look too good under my white T-shirts! And I am far from being a veteran, got my first stoma just over two years ago, emergency colostomy from a perforated bowel, then a second surgery to remove more large bowel a few months later. Major problems ensued and I finally got my current ileostomy just over one year ago, which meant learning to live with an entirely different stoma, so different products, etc. I'm still learning myself, but I'm lucky I've found products that work well for me. It's nice to be able to pass on any knowledge or tips I can because I've appreciated all the help I've gotten from members of this site, as well as good doctors and ostomy nurses I've been lucky to have.

Terry

Panko
Jan 08, 2022 9:08 pm

I'm 3 years in, had to find my own way mostly as my stoma nurses were crap tbh. Just found out things from other ostomates on the way in hospitals or online chats like you.
But yeah, they do black things to blend it with the skin!

Past Member
Feb 26, 2022 11:57 am

Thanks for the internet radio stations... Mi Soul, Mi Groove, Mi House! I am hooked! LOL {{{Hugs}}}

Mark1
Dec 12, 2023 10:48 pm

Went to the shops today and bought a new stick deodorant. On it, it said, "Remove lid and push up bottom." For God's sake, I'm in agony and can hardly walk. 🤣