Why is my stoma shrinking below the skin barrier?

Replies
17
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186
Knuclehead
Mar 24, 2025 12:44 am

Why does my stomach shrink below my skin barrier?

warrior
Mar 24, 2025 12:52 am

Maybe you scared it? ☺️. Just kidding.

They do shrink. I call it breathing. But if it recedes that far in, you might be in trouble.

You may need a better flange or wafer. What are you using now?

How old is the stoma?

IGGIE
Mar 24, 2025 12:59 am

Are you using a convex wafer?

IGGIE

eefyjig
Mar 24, 2025 1:00 am

Warrior is right; they move a lot. If yours dips below skin level, a convex wafer can help pull it out a little.

Knuclehead
Mar 24, 2025 1:05 am

Hollister, this has just stated, going on 6 months post-surgery.

 

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Knuclehead
Mar 24, 2025 1:06 am

Sorry 9 months

Knuclehead
Mar 24, 2025 1:16 am

No, this just started.

IGGIE
Mar 24, 2025 1:19 am

Talk to your stoma nurse, but I would get a convex wafer if I were you.

IGGIE

warrior
Mar 24, 2025 1:22 am

Yup... agreed. 👍

warrior
Mar 24, 2025 1:24 am

Ok, not a fan of that brand.

Do you have a part number? Some means of a description?

I will look it up, but it should identify itself on the box it came in. Let us know. Thanks.

Knuclehead
Mar 24, 2025 1:33 am

Yes. It's a 11203. I have one convex wafer; however, I do not know that #

SusanT
Mar 24, 2025 2:22 am

Mine retracts to skin level at times. It didn't do it at first (or at least we didn't know it). It started around 3 or 4 months post-surgery for me.

Knuclehead
Mar 24, 2025 12:46 pm

What did you do? It has returned to normal.

Knuclehead
Mar 24, 2025 12:47 pm

P.S. I'm nine months post.

Beachboy
Mar 24, 2025 2:31 pm

Hello,

A convex wafer would help... but can have its own problems. Constantly pushing the area around your stoma downward can cause soreness. And you might still experience leaks.

The addition of a support belt would help maintain downward pressure to prevent leaks. But it can cause uncomfortable soreness.

Revision surgery can pull out a retracted stoma. You would need a consultation with a gastro surgeon to explore if this would work for your situation.

Knuclehead
Mar 24, 2025 6:15 pm

Thank you.

SusanT
Mar 24, 2025 9:36 pm

I switched to a convex wafer and got a hernia support belt. I've been able to manage mine better than most people. At least so far, my system works, and I get 7 days of wear.

That said, I still expect to get revision surgery at some point. I'm still dealing with some surgical complications that have to take precedence for now.

infinitycastle52777
Mar 25, 2025 2:53 pm

Stomas change size and shape after surgery, but 9 months out is a long while to still be shrinking. If it's going below your skin level, that might be something you want to talk to your doctor about. If you have a hard time getting a wafer on or keeping a wafer on, then you might need to have your stoma medically pulled out some.