Failed reversal due illostomy bk Friday looking for advice plz

Hey all after looking online all night with no success I remembered this great community and just wondered if anyone has been in a similar situation and could share there story/ recovery sorry it's a bit long ....

In June 2021 my 7 year old got a stoma due to chemo side effect basically it never helped so in Oct 21 his colon was removed and he got an illlostomy ( sorry about spelling) then in aug 2022 after having it prolapse leaving a small hole the meant he kept getting sepsis it was decided to give full reversal and see how it went . Well it's not . So on Friday he goes bk in to get the illlostomy put bk in . Has any had this .he was very very poorly after reversal ending up in picu main because it look his bowels so long to work . I would just love more info . How long will he be down . Is this going to be bad because I have been told each time the bowel gets handled it takes longer to return to normal. So if you include the prolapse and the exploratory operation after reversal will be 6 bowel operations since  June 22 . We do including him feel he needs it back just worried about recovery etc and what to expect .

This all must be tough for you as his mom and for him either. I will be praying for you both. Is he in remission? 

Are you using NHS or private? (Asking because of possible different options)

He has 6 more months of chemo . It's three and half years old treatment plan . But cancer wise he seems to be doing great it's the side effects from the chemo that's the worst part x 

NHS babe everything has been so far .

So sorry he's going through that. Can the doctors give him tpn through iv while his gut heals/wakes up and is he still on antibiotics?

There's a CLeveland Clinic in London, is there any way you could get a consult there and they might be able to collaborate or do a  consult with your son? I apologize as I don't know all the intricacies between NHS care and private care- what I know is very broad. 

There's at least 2 former medical people I wish I could tag to look at your post, I checked and don't see either online right now. With my last surgery in November, when my ileus decided not to wake up they told me with every bowel operation there's a 50/50 chance it will wake up quickly/correctly (I don't remember that statistic beforehand)- but idk if the statistic is the same for children as adults. 
It sounds like you've got quite the little trooper there. 

Years ago after my reconnection surgery at mayo in Rochester my bowel took around 10 days to wake up. They had to put in an ng tube to drain my guts and they didn't want me throwing up to not add any trauma to the surgery. They did everything they could to let it wake up on its own and were close to giving me nutrition through a picc line. Probably the same as what they are doing with your son because every time they have to do surgery it could cause other problems, hopefully it wakes on its own soon. I know there is people on here with more experience with situations like your boys and will se your post and help you out.

This is an inspirational story of a now grown child ostimate.

That she is more than an acquaintance is a great honor to me.

She is one of my mentors and heroes I hope her story is of some help

PS I did reach out to her through an old connection we have drifted apart since my illnesses but I did ask if she had any words of wisdom for you to reach out either to me and through me to you or directly to you as I told her that I found you on this site. typically a link like this would be impossible to share here. So if you do a Google search for: We Are Care Managers-Paula Erwin Toth-Nurse Story. You should be able to hear her tell her story in her own words.  The video is about 3 and 1/2 minutes long and if you are at all internet savvy the first part is a fairly popular video site (owned by Google) The digits below represent the end of their usual string for a link.  I hope I'm not breaking any rules I only want to help this is no advertisement there is not one advertisement that I'm aware of involved.

/NRc_JHPgVoo. 

I am really sorry I know it must be tough.. my nephew had leukemia when he was 1 and half to 2 years old and his treatment plan was a long one. I will be praying for that sweet child of yours and for you mom. 

So sorry you and your little one are going through all this. Sending loads of love and positive vibes your way. ❤️🙏✨