Hi all! I'm just popping on for a bit. I think that I told you that I now have two verified autoimmune disorders, Prurigo Nodularis and now confirmed Bullous Pemphigoid. The second one, which I refer to as BP, is wreaking havoc with my ileostomy! The dermatologist put me on a liquid Clobetasol. It has a high alcohol content and it really stings when I put it on the raw sores under my skin barrier. If I do not use it, my BP gets out of control and many blisters form under my barrier. When I use it, I have to cover the raw skin and then I have difficulty getting a good seal on the barrier. BP causes other issues as well. It affects my joints and contributes to the pain I experience when the inflammation in my joints gets out of control. The BP sores and blisters have attacked my knee replacement incision and are causing it to become infected and has also caused some cellulitis in my knee. Luckily, I was given some heavy hitter meds to knock it out quickly. I can say I am frustrated, angry, and very depressed with all of this. The most troubling issue of BP is that I was given a sheet from the dermatologist explaining that aspirin, NSAIDs such as ibuprofen, Aleve, Advil, Motrin, etc., can no longer be used. Since I am allergic to 99 percent of all narcotic pain medication, this new medication issue really throws a wrench into the punch bowl because I am now limited to only Tylenol products. There are also many antibiotics I am no longer able to take because it flares up the BP. I also had my Lisinopril heart medication removed and they haven't found a replacement for me yet. Also, I no longer can take vaccinations such as flu, pneumonia, and shingles, and the Covid vaccine is no longer in my wheelhouse (I'm okay with not taking the Covid shot). I am worn out with all of this. Every time I turn around, I get attacked with another disorder!! I would really like to have a few years of no health issues for once in my life. Anyway, thank you for letting me vent my frustration for a spell. I hope the majority of you are all doing well. Take care!
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Struggling with Bullous Pemphigoid and Autoimmune Disorders
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