Help Needed for Stinging Ileostomy Edges

Replies
13
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588
The boat
May 04, 2025 1:19 am

Hello! The edges of my ileostomy are raw. I've used the stoma powder and also tried calamine lotion, but once the pouch is on, it stings. I've also poured some water in the pouch. Any suggestions?

Peace

xnine
May 04, 2025 3:10 am

Try putting a pouch on another spot to see if you get a reaction. Maybe you are allergic. Good luck.

warrior
May 04, 2025 4:15 am

Raw skin like that sucks. Usually, you get no adhesion.

You should see a stoma nurse about this. But what Xine said is true; there are o-rings and wafers that can be toxic to your skin and cause exactly what you're going through.

Determining if it's bacterial or fungal would be next.

There are a few discussions on treatment in the forum section.

I saw my stoma nurse. My barrier ring was toxic. Nystatin worked for me. Using a Cera ring was a game changer. This all happened last October.

It's a prescription.

Posted by: Bagface

Angelica- As usual, you've written another interesting post. February 5th, 2019, was my reversal surgery after having an ileo for 6 months. I'm one of those fortunate success stories. Of course, things are different now, and I still have to be careful about what and how much I eat, as I don't have a colon. At first, I was afraid to leave the house. My biggest fear was having to use a public bathroom and have the toilet not flush! Even now, when I know that I'll be in someone else's home, I won't eat anything beforehand. I read other people's stories and sometimes feel guilty for having had it so easy, not to mention that I have a significant other who is 100 percent supportive. I've gotten so much out of this website and truly feel for those of you who have it so much worse than I. But I feel it necessary to let folks hear about the success stories.

Ben38
May 04, 2025 5:48 am

First thing to rule out is the hole you're cutting in the flange too big.

Axl
May 04, 2025 9:44 am

Do you use a barrier ring, and/or a barrier spray like Cavilon?

 

My Ostomy Journey: Kimberly | Hollister

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Justbreathe
May 04, 2025 11:05 am

This sounds crazy; however, it worked for me. I applied Vicks VapoRub on the raw area (just around the stoma on the raw area). Not for everyone, but it worked for me. jb

h2893535
May 04, 2025 5:21 pm

I have to use stoma paste in a thick ring around the hole I cut in the flange. I also use a template that a wound nurse made for me as I was making the opening too big. I'm having surgery tomorrow to have it reversed, and I hope it is successful. I really hope you can feel better very soon.

Beachboy
May 05, 2025 4:37 am

My stoma used to sting from cutting the wafer hole too small. Now I cut the wafer hole larger and use a moldable barrier ring. No more sting.

infinitycastle52777
May 05, 2025 5:47 pm

Try Marathon. And make sure you aren't cutting the hole too small.

eefyjig
May 05, 2025 6:03 pm

Hi, it sounds like your output is stinging any areas with exposed skin. Along with these other excellent suggestions, maybe try to keep your bag off for a bit so your skin can breathe.

Beachboy
May 06, 2025 3:47 am

Also this: Changing the wafer too often... it is very easy to damage your skin and not know it. Taking the wafer off too fast or too often can damage your skin.

I have a colostomy. Change the wafer (carefully, slowly) every 10 days. My skin looks perfect every time my wafer is off.

The trick is: Discover the change interval that works best for you. I started out changing the wafer every 4 days.

Axl
May 06, 2025 5:15 am

Hello H

I hope all goes well for you.

SusanT
May 08, 2025 1:09 am

Someone here suggested Domeboro soak once. It's a powder you can buy over the counter. It's sold for weepy rashes like poison ivy. Soak a paper towel and place it on the skin. It will help dry out the skin and heal it.

I used this on skin that was breaking down around my drain. I was getting small bowel fluid leaking around the drain, and the skin was a mess. This really helped me.

The boat
May 14, 2025 3:46 am

Thanks. Did you get it reversed?