Was wondering if anyone here has been diagnosed with diversion colitis after having a colostomy surgery. Did you have symptoms? What were the symptoms? How were you treated? Did the treatment work? Would appreciate any input.
markmd1112
Apr 01, 2023 6:21 pm
Mabsie Moll
Apr 03, 2023 2:07 pm
I was just recently told by a gastroenterologist that the colon doesn't like 'being idle,' for want of a better way of putting it. So when one has an ostomy, Div. Col. is often the result. I was told that it causes inflammation and the sensation to pass wind through the rectum even though that part of the body is bypassed and that I shouldn't be concerned about it. I'm not sure if that answers your question though🙋🏼♀️
MeetAnOstoMate is a remarkable community of 41,408 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
HenryM
If I was a relative newbie with an ostomy, I have no doubt that this site would be very helpful to me. The members are quick to respond to questions and issues and they are filled with experience. When I joined, I already had a lifetime with an ostomy, so I just regard it as a place to meet and communicate with other folks similarly situated. Either way, it is a good site.
markmd1112
Apr 03, 2023 10:03 pm
Thanks for your reply. So, I gather you haven't had any bothersome symptoms? Since my colostomy surgery 9 months ago, I have been having severe pain in my anus and rectum with a constant urge to go to the toilet, even though my stool has been diverted. I read about diversion colitis and thought that maybe the cause is diversion colitis. I wanted to know if anyone had been diagnosed with it and if they have symptoms similar to mine.
Advertisement
Hollister
Living with an ostomy doesn’t mean you have to live with stoma fluid leakage or skin irritation.
Learn how convex skin barriers work and what benefits they offer.
Learn how convex skin barriers work and what benefits they offer.
gentlejohn
Apr 06, 2023 9:52 pm
Why did they do a colostomy? Has someone looked into your rectum to be sure there is no pathology there?
Yes, I am familiar. Disuse colitis/proctitis is best managed by short-chain fatty acid enemas.
Should there be inflammatory bowel disease, then mesalamine suppositories are very beneficial and can be supplemented by cortisone suppositories. Caution, taking approximately 25% of the cortisone is absorbed and is like taking 1mg of Prednisone.
markmd1112
Apr 08, 2023 9:56 pm
Hi. Thanks for your comments. I just had a flex sigmoidoscopy with biopsy last week. They didn't find any malignancy or any IBD. All that was identified was acute colitis pointing to diversion/disuse colitis. I'm trying SCFA enemas. So far, no improvement of my symptoms, just rectal irritation from the enemas. My colo-rectal surgeon has prescribed mesalamine enemas as the next thing to try if the SCFA enemas don't work. I read up on mesalamine and hope I don't have to go there.
Have you tried either? If so, how has your experience been?
My Ostomy Journey: Jearlean | Hollister
