Is it normal for mornings and evenings to feel so different?

Replies
22
Views
436
louisegc

Hello,

I am 5 weeks post op after emergency surgery for diverticulitis. This forum has helped me so much with the confusion, anger, depression and exhaustion I have experienced in the last 5 weeks, thank you all.

I have a question I haven't seen asked anywhere though, about mornings versus late afternoons/evenings. In the morning I have relatively high energy and feel physically pretty good, but in the evenings, regardless of how much I do during the day, I experience dizziness when I get up from the sofa to go to the bathroom (which I do often because I make sure I am well-hydrated). Also the wafer of the Convatec 2-piece system I wear becomes increasingly uncomfortable during the day. It is not skin irritation under the wafer, it is more like because my stomach has expanded during the day but the adhesive is holding the skin firmly the skin feels very stretched - is that possible? Does anyone else suffer from this and does anyone have any advice for me please? 

Thank you!

warrior

hi.. good thread. . after reviewing it a few times the red flag i see is dizziness. which i will comment on..

i just went through this nov 15. after my kenn but surgery oct 9. 

each time getting up i had to wait a few seconds. i did get light headed. had to hold on to the walls.. and it is scary. like something is taking over your  mind..

i was dehydrated. u say u were well- hydrated. my b.p. nose dived at the time. this will occur when badly hydrated. there could be other issue at hand..perhaps over hydrated? 

i still experience an " off" feeling presently. it is mild tho.

this was  major surgery so yur body needs time to adjust but listen..dizziness in general is not good..any time.  especially after surgery.. at home.. and alone..its a sign . pls get it checked out. 

keep us posted. - Warrior

 

Gray Logo for MeetAnOstoMate
Top 5 Collections
Beachboy

Keep an eye on your blood pressure.  Getting up quickly after sitting will cause dizziness if your blood pressure is low.  

I fell getting up from the couch.  Got light headed/dizzy.  Luckily didn't break anything, but had sore ribs for awhile.  Reason:  low blood pressure.  It took 2 months post op before my pressure stablized higher.  My low was 90 / 60.  I wore pressure stockings on my legs, which did help.  

Be careful getting up after sitting, even if your pressure is OK.  Takes awhile to recover from surgery and your new normal (stoma).  I had balance trouble for a couple of months post op.  Even now, a year post op, I still have to be careful turning around, putting on shoes, pants.  

I have a colostomy.   At first, my wafer was uncomfortable and I could feel it all the time.  And the stoma felt heavy.  It just takes time to adjust to it.  About a month ago I started using a barrier ring.  This is great.  I don't have to cut the wafer hole to fit my stoma so close.  I used to get stinging and just an uncomfortable feeling when the wafer hole was very close to my stoma.  I don't really notice my stoma anymore, or feel it.  Just takes time.

Take care

 

Bill
Reply to Beachboy

Ditto!

louisegc
Reply to warrior

Thank you!

 
Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
louisegc
Reply to Beachboy

Thank you!

Rose Bud 🌹

Everyone else pretty much has said it....Watch out for low blood pressure!!! Sometimes we think we're well hydrated and we're really not. I just went though this issue recently during IV treatments for low iron and was hooked up to a blood pressure cuff and I had a busy week with having surgery and other appointments around my treatments and it deeped extremely low and once they gave me a bad of IV fuilds it went back to normal. (I have to drink 90-100oz a day...1.Because I'm high volume Ileostomy 2. Have CKD) So even if you drink a bit less fuilds it can happen. If your constantly feeling dizzy,Please go see your doctor. LOW BP can become very dangerous and in my case they did extra blood work to rule out thyroid issues from being sick with other issies other that an ostomy. BUT turned out in the end at least for me (Yes everyone's  situation will be different, but in most it's due to not being hydrated) I developed a stomache ulcer and just started treatment and 2 weeks later I was fine .

ron in mich

Hi Louise welcome to the site i would suggest adding some salt to your food or whatever fluids you drink as the salt will help to retain fluids and keep you from being dehydrated if that may be the problem, also add an electrolyte type fluid to sip on not just water.

warrior
Reply to Beachboy

damn beachboy. i could not have said it any better..altho..ha ha i wish i did.

went through same thing as you.

90/50 bp. . 4 liters i v. to rehydrate.

who knew? .

 

90/50 

Mysterious Mose

I have naturally low blood pressure. 100/60 is pretty normal for me. Getting light-headed when standing up quickly or raising up from bending over has been an issue for years. Having an ileostomy makes it even worse. Subsequently, I found that I need to be especially vigilant about staying hydrated. I have had episodes where I have not been able to stand or walk without support. Scared me the first time it happened, as I immediately thought stroke. More self-examination dispelled that, but it was enough to make me more religious about hydration.

Daniel

Morning glory

I agree  with all the above. Dehydration  is your enemy.  Watch your BP.  I always keep something  to drink on a table by my chair or night stand.

AlexT

Do you take any medications that can lead to the dizziness?

louisegc
Reply to ron in mich

That's a good suggestion, thank you I will try that

louisegc
Reply to AlexT

No I don't take any medications at all!

whackjob74

I just had my illeostomy in June and had historically low blood pressure as well. One thing they don't always explain clearly is that its super easy to get dehydrated with an illeostomy. The symptoms are not always the same as they would be before the ostomy and just drinking more fluid can actually make you more dehydrated. It takes a while for your small intestine to compensate and absorb more fluid so if you have lots of output, it could actually be making you more dehydrated. I was advised by my Dr and ostomy nurse that if output is really watery, to drink less liquid and stay away from plain water. Try more pedialyte type drinks and eat foods that will thicken the output.  Everyone is very different so finding the balance that works for you will take some time. Definitely worth checking in with your Dr/ostomy nurse about it. 

Justbreathe

Bravo to all for providing great information!!!

I have become extremely dehydrated- drank wayyyy more water (per reg. Doc’s recommendation) which flushed my sodium…. but working on changing that now and hopefully things will improve.  What one doc may recommend may not be what another doc might recommend.
This web-site is so full of vital information from the voice’s of experience.  
We are each different and it’s important to take heed to some major helpful hints - such as…stay hydrated and not necessarily from plain water, chew chew chew your food choices, monitor output (this is why I prefer to wear a clear bag), and pay attention to what you can or cannot eat/tolerate even though you were able to eat it in the good ole’ days.  
As a point of interest I have read on doctor Google a blurb that claimed  75% of Americans are actually dehydrated.  Could this possibly be true?  I think of all the folks who constantly walk around with water in hand and the bazillion of plastic bottles we now feel we must have.  And once we have downed them - we then contribute them to our landfills - and some wonder “what’s so good about the good old days” ???  I can think of a few things.  jb

 

kennybob94zz
Reply to Justbreathe

I would drank warm water before bed.

kennybob94zz
Reply to Justbreathe

I would drank warm water before bed.

Bill
Reply to Justbreathe

Hello JB.
Thanks for your post which culminates with a great possibility for a rhyming verse. However, I do believe I have already tried to cover this sentiment in a previous rhyme. 
It is always very satisfying to resurrect rhymes that I had almost forgotten about.
Best wishes
Bill

AN OLD GREEN FOOTPRINT.

Now I’m old, I have been told
I should green principles uphold.
As if, in times of long ago
these were things we did not know.

Though my memory’s fading fast
I still remember from my past.
Whilst being green was not our aim
the principles remain the same.

I recall those far-off days
before the use of throw-aways.
‘Green’ was not seen as fantastic.
in those days before the plastic.

Our bags were all reusable
and waste was inexcusable.
Glass bottles were returnable
and rubbish indiscernible.

Certain things had a deposit
and this was very apposite.
For never did I money lack
as I would take these items back.

Way back then we would be bound
to nearly always walk around.
One or two would have a bike
but most of us would have to hike.  

All things British were well made
I sharpened my own razor blade.
Nothing was ever thrown away
but kept to use another day.

Fuels were scarce you understand
so everything was done by hand.
Our eco-footprint was so small
it was hardly there at all.

                                    B. Withers 2012
       (in: ’A Rhyming Cookbook’ 2013)

 

warrior

just  though regarding b.p.

if u use a home b.p. monitor.

both yur arms will show a difference in b.p.

could be the machine. but if u have a better arm use it. according to my home b.p.machine  my right arm shows lower bp than left. 

can scare the poop out of u when there is very low bp registering on that right arm.

 

louisegc

Thank you everyone for the advice and for sharing your experiences. It does seem to have been over-hydration - I am now using a couple of sachets of electrolytes a day in my water and the dizziness has laregly gone!

Bill
Reply to louisegc

Thanks for the feedback - it's always useful!
Best wishes

Bill

Beachboy

What I learned from my doctor about blood pressure.

A small difference in blood pressure readings between arms is OK.  But a difference of more than 10 millimeters of mercury (mm Hg) might cause worry. The difference can be in the top or bottom number.

If you repeatedly have a difference between arms of 10 to 15 mm Hg for systolic pressure (the top number) you are more likely to have vascular disease and a greater risk of developing heart disease over time.

A repeated difference of more than 10 mm Hg in blood pressure measurement between the arms can be a sign of a health problem such as:  Blocked arteries in the arms, known as peripheral artery disease.  Diabetes.  Kidney disease.  Heart problem.

If you have a large difference in blood pressure readings between arms, talk with your doctor for further diagnostic testing.

Also blood pressure between an arm and leg is used as a screening test.

* Please, do not post contact information, personal information or advertising.
All times are GMT - 5 Hours