Affordable Out-of-Pocket Medical Supplies Recommendations?

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7
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1173
MildCapricorn76
May 13, 2024 11:23 pm

Any recommendations for cheaper places for buying supplies out of pocket?

Insurance only covers bags/wafers, but I need powder, Eakin seals, etc. Tried ordering from Amazon; quality was terrible.

I am in the US.

Thanks.

Happytostillbehere
May 14, 2024 12:16 am

Maybe it's just me, but there's something morally wrong with the fact that in this country people in need of quality of life medical supplies, including pharmaceuticals and not just ostomates, have to do without because of the outrageous cost associated with them. We have to do better!

Posted by: Primeboy

Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!

I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.

On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!

Someone once wrote that our children are the letters we write to the future.

PB

Axl
May 14, 2024 4:15 am

Not enough politicians have ostomies over there. When they do, your dilemma will change. I agree the medical system in the US is dreadful.

AlexT
May 14, 2024 8:10 am

If it was less about money and more about healthcare, nobody would have issues getting their stuff. But, it's all about money so... 🤷‍♂️

mild_mannered_super_hero
May 14, 2024 11:45 am
Very helpful

Have you tried eBay? I buy all my supplies there. I normally pay about 1/3 of retail. The key to eBay is to buy before you run out.

 

My Ostomy Journey: Bruce | Hollister

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Itsme58
May 14, 2024 12:17 pm

Good morning, sometimes people will take some of their supplies to the medical supplier. For example, I get my supplies from Binsons, and one day I needed powder when I was there because my insurance pays for an extra amount of powder. I get four bottles a year. It's really dumb, but sometimes people take their extra stuff that they don't need anymore, that they haven't opened or used, to the medical supply and they donate it to somebody who needs it. They have a basket with donated stuff in it, and they had the powder and they said, "Here, someone donated their excess powder. You can have these." So maybe if you go to your local medical supplier or something, maybe they have a bin of donated things that you might be able to use. Try checking that out too.

Have a wonderful day.

MildCapricorn76
May 14, 2024 4:54 pm

I haven't actually. It never occurred to me they would have supplies! Thanks for the idea.

aTraveler
May 17, 2024 8:31 am
Very helpful

Best Buy has good out-of-pocket prices:

https://bestbuymedicalsupplies.com/collections/ostomy-supplies