Tips for Transitioning from Loop to End Ostomy?

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Marsling
Jul 18, 2024 2:21 am

Hi everyone, this is my first post. I'm just wondering if anyone has any tips or advice as to what to expect or how to prepare. I'm supposed to have my loop ostomy converted to an end ostomy in August. I know everyone is different and my situation might not look like or turn out as someone else's, but I figured it couldn't hurt to ask. Thanks.

Beachboy
Jul 18, 2024 2:35 am
Very helpful

Ileostomy or colostomy?

Be sure to mention to your surgeon to leave your stoma sticking out about 1 inch. If the stoma is too close to your skin... trouble. Leaks, damaged skin. It's better to stick out too much than too little.

Look at past posts on this website. Topics like: leaks, skin care, parastomal hernia, body image, intimacy, ostomy products. Then take a peek at the "Just for Laughs" section. We Ostees are a humorous bunch.

Good luck

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

Hisbiscus
Jul 18, 2024 4:00 am

If you're getting an end ileostomy, ask them to remove the rectum and the stump and sew up your bum because you won't need it any longer anyhow, as there's no going back and it causes people problems when left in.

Marsling
Jul 18, 2024 4:22 am

Oh sorry, I forgot to mention it is a colostomy.

Marsling
Jul 18, 2024 4:25 am

Thanks for your comment. I forgot to mention that it is a colostomy. Great tip, though.

 

How to Stay Hydrated with an Ostomy with Collin | Hollister

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Past Member
Jul 18, 2024 7:50 am

Do get a Barbie Butt. It's uncomfortable to start with but well worth it in the end. Be careful they don't put your stoma too close to your waistline. If you wear clothes with a belt, it can be an issue.

eefyjig
Jul 18, 2024 11:47 am

Hi Marsling, you'll probably have an ostomy nurse come in before surgery, have you move around, bend, etc., and mark your belly where the stoma will go. End ostomies seem to be easier to care for than loop ones. Bring loose-fitting pants to the hospital with you on the day you go home. If you are going to have a Barbie or Ken butt, let us know and we can guide you.

ron in mich
Jul 18, 2024 12:10 pm

Hi Marsling, welcome to the site. When you get your colostomy, be sure to ask about irrigation, and maybe you won't have to even wear a pouch, but that will be down the road after you heal and get back to what's normal for a colostomate. Good luck.

kittybou
Jul 18, 2024 1:44 pm

Scrub pants are great!

Jayne
Jul 18, 2024 3:14 pm

Hello Marsling

 

As I have never had a loop ileostomy, personally I am unable to answer your question specifically.

 

But Marsling, one specific thought I would like to share with you is - please "KEEP AN OPEN MIND AND NEVER 'EXPECT' THINGS"... It has taken me many years to learn this - for, certainly within the Western World, many of us 'expect' a certain range of experience to follow an action - even if we do not 'expect' a defined outcome - which, when requesting or agreeing to a specific, IMHE we do tend to have a range of expectation as to how/what the 'outcome' of an action may be.

 

You are right to ask questions and I hope you have a good Medical / Surgical Team who have been open, frank, and exchanged information to a point where you feel you are 'informed'.

I would urge you, if there is anything you feel you do not understand or feel unsure of - ask further questions.

You are wise to seek the input of patients who have been through similar procedures in order to prepare and take on board perspectives from other patients' points of experience - for we are varied and many.

Hang in here - revisit - because there WILL BE folk who may be able to give you pointers and share their experience of a similar or related procedure to your own. You are absolutely right to qualify your request with your own appreciation of the fact we are all different :-)

 

Best wishes - I hope your interventions go well and your health and quality of life improve going forward.

 

GOOD LUCK

 

Waves from across the pond

 

~ ~ ~ Jayne ~ ~ ~

UK