Meet & talk to fellow OstoMates Support | Friendship | Dating 20,834 members

Unusual pain around Stoma

Posted by Dixie1, on Tue Jul 05, 2011 12:57 am

This is my first post and hoping that someone might be able to help.

I have had an ileostomy for 42 yrs (was 10 weeks old when I had my surgery due to UC) Had my rectum and anus removed at age 7.

Thankfully I have been relatively problem free, through the years, but recently I have been experiencing pain around the left side of my stoma, it's a rather sharp pain that feels tender to the touch, and hurts when I am eliminating from my Stoma. It feels like I've pulled something inside.  This has never happened before.

I have ovarian cysts and am wondering if it is growing into my Stoma.

Has anyone else experienced this type of pain?

A little scared need advice.

Any info is appreciated.
Reply by banshie3by5, on Sun Jul 10, 2011 3:10 pm
Hi, you should definitely see your doc, if you haven't since this post.  You could have an adhesion(scar tissue pulling) or a hernia.

When I was (undiagnosed) septic my right ovary had encapsulated & grown to the size of an orange, effecting my guts.  because of previous barium spill into the lower right quad, they could not see anything and blew it off as non-issue 'adhesion pain'.  I finally bypassed my GI, went to my primary doc and demanded a resolution to the worsening & excruciating pain.  I was misdiagnosed with ovarian cnacer mets to r. kidney.  I went into surgery expecting to have a hysterectomy & remove r. kidney.  I woke up with both my kidneys, no r. ovary or phallopian tube, 3 bowel resections  plus another ending in a colostomy.  Due to blood loss they had to finish the hysterectomy at the next (3rd) surgery.    My primary apologized for the ball being dropped.  My GI remained the same p.o.s. he was before and I stopped seeing him.

So in answer to your question....yes, ovary pain can be a symptom of gut issues.  But the pain around the stoma is definitely a must-see issue, also.
Past Member
Reply by Past Member, on Sun Jul 10, 2011 4:42 pm
I dislike doctors to the max, but I hope you listen to banshie and check it out.  It may be nothing significant but the alternative - serious stuff undiagnoised - is unacceptalbe.  Let us know. Carol
Reply by MarkP, on Mon Jul 11, 2011 6:08 am
As the other posts said "see a doctor" as soon as possible you don't want a bad outcome by waiting. Good luck and stay in touch.

Reply by Dixie1, on Wed Aug 03, 2011 6:31 pm
Thank you for all your advice, I went to the Dr. and although the pain had subsided, it was determined I had pulled the muscle around the stoma with an overweight book bag for school.

As far as the cysts go he does not recommend surgery far too risky, I've had my stoma my whole life first surgery was at 10 weeks old.

So thankfully no surgery, but I get to keep the 4 cysts I have. I joked with him that I've pretty much had everything taken out of me, now I am just growing stuff. You got to laugh right?

Thanks to everyone for your advice funny we know what we should do deep down but have to hear it from others. Thankfully I have a good friend that chimed in with a threat that they would drive me to the Dr, if I didn't get an appointment on my own!

This is a great place to read up on other's issues that we all share.

Have a good day.
Past Member
Reply by Past Member, on Wed Aug 03, 2011 6:42 pm

So glad it wasn't anything requiring surgery.  Nothing is really minor with these issues.  And it is good for us all to hear positive outcomes.

I tried to check out your profile and didn't find anything. I would love to know more about you "my... first surgery was at 10 weeks old". You must have an interesting story. ... "an overweight bookbag"?

What do they do for the cysts?
* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 6    
4 members & 2 visitors
lovely (f)
Welcome to MeetAnOstoMate - the largest online community for people with an ostomy.
If you have questions or just want to meet and chat with others, join us and enjoy our great community.