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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Hello, I am from Lafayette, IN. Good to see someone close to where I live. I have an ileostomy due to a cancer drug a doctor gave me, and I feel he did it for the money because the cancer doctor I have now said they would have done radiation. I am so mad this happened in March, and I am trying to accept it. Most days I do, but other days I want to sue his ass off. I was thinking about hooking it back, but I have no colon, so it will just be the small intestine, and I have heard so much about doing that and it's not good. Do you know much about it? I know it's a lot easier to have a colostomy. Is that true?
