Calling all Urostomates!!!
I have only had my urostomy for two and a half years, but in that time, I have been getting many recurrent Urinary Tract Infections. The last three with only one IV antibiotic that is sensitive and will not damage my kidneys.
I shower every day without my bag on, allowing just water to wash my stoma and the inside of my wafer. I don't apply any product on my stoma after the shower, then put on a new bag for the coming day.
I change my flange and bag every two to three days, where care is used to ensure hands are sterile and the stoma is not touched except by the barrier ring seal.
I drink at least two liters of water every day, sometimes up to three liters, and I take 10,000+ Cranberry capsules. I have also been on a course of Urinary Alkalinizer as well as an everyday preventive antibacterial tablet.
Do others suffer from these infections, and has anyone found something that can help?
My symptoms include stabbing kidney pain, general pain, high temps of over 40 C, chills, sweating, and an overall feeling of being very sick with no appetite.
I am willing to try anything my doctors will allow me to use. It is getting very bad contracting a new infection just days after finishing a course of antibiotics. Some days, just trying to get to the hospital to receive my IV antibiotic becomes very hard, and I think I would be better off admitted, but it is too easy to pick up other infections in the hospital. I may be much worse off.
Click to make a ceramide-infused accessory sample request.
Find support, love, and understanding at MeetAnOstoMate - the largest independent website for people with an ostomy surgery.