Upcoming Ostomy Reversal Surgery: Seeking Advice and Support

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precious baby
Feb 04, 2015 3:19 am

my reversal surgery is coming up. ive had a ostomy for 16 months. i had to wait a year post op before the insurance kicked in. its painful i had no underlying heath issuses besides a 14 pound tumor removed that had broken through my intestines.i never know how im going to feel day to day. its very difficult and i have told very few people about my ostomy.im located in texas and the surgeon is in san antonio which is a few hours away from padre island. there was a gentelman from houston who had a reversay surgery in houston im looking ofr him and anyone else with any imformation that would be helpful.im staying positive i would of died almost did if i hadn't been given a ostomy.i wsh everone well.

Mary Ann
Feb 04, 2015 4:45 pm

Good luck,

I had my reversal last October and feel better every day.  Having had 4 surgeries in a year and a half, I feel I had much better results when I switched to a colo rectal specialist surgeon.

Last step is for me to get a colonoscopy next month, never had a successful one because of the stricture

 

 

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

mollymoo
Feb 05, 2015 1:48 pm

hello there would you recommend your surgeon? I am desperately looking for a specialist and one that could deal with a complex case such as mine? who would be willing to attempt a reversal-My first one failed like I said my case is extremely complex so he would have to have expertise in this field. thank you