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OK. I'm "talking"

 
This is the best website for people with an Ostomy. So much understanding.

If this is a website for ostomates needing or offering help with others familiar with this whole process, why would we have topics like “Let’s talk” or “Questions NOT related to ostomy”.  Well I think the developers of this site demonstrated some insightful perception of what might be good for us.  The time I spent posting or replying to stuff unrelated to our condition is time I wasn’t thinking about our condition and while not thinking about it I was unaware of it.  “Just for Laughs” is terrific but I know some folks found it difficult to find humor of any kind, in any place early on.  I love it and look forward to your contributions.

There’re lots of things to “talk” about even stuff like my excessive use of quotation marks.  There are insurance issues, government assistance here in the USA compared to the UK, Canada, Australia and other places.  We could discuss what we’ve learned about folks who really care and those who don’t give a crap; those that make believe and those who became more scared than we were.  

Talking is good for me.  Often it’s better than thinking.  Talking without thinking still doesn’t work regardless of how hard I try.

To all, stay well or be good or both.

Respectfully,

Mike

 

Hello Mike. It is as you say. If you are thinking or talking about something other than stomas and their associated problems, then you have been distracted 

It is as you say. If you are thinking or talking about something other than stomas and their associated problems, then you have been distracted. This may or may not be a good thing but if it helps some people then it must surely be a worthwhile exercise. For those who do not want to take part in such an exercise then there are always the mainstream topics to join in with. There is even a 'logoff' button for those who can't find it in themselves to take part at times when they would rather be doing something else.  

I never noticed  your excessive use of """""""""""""""quotation marks""""""""""""""""!

Best wishes

Bill 

MeetAnOstoMate - 28,361 members
 

Hi Bill.  You obviously get it.  Thanks.

Mike

 

I think distraction is a good thing...I have severe ptsd because of this condition...I'm hard to distract because of it, but I love it when you can or can make me laugh.

 

Hey Eli, thanks for stopping by.  You've been through a lot of the crap we all experienced and maybe even more.  I respect your comments and I think we all learn from folks like you.  

I think laughter is about the greatest medicine even if it doesn't last forever.  I remember the days when we laughed so hard we had snot flying out of our noses and who knows what out of other orifices.  Let's look forward to the next time we can darn near laugh our butts off.

Mike

 

So for some unknown reason I found a nearly year old post entitled “meetanostomate”.  I started it and Don, Vulcan and Marsha had lots to say.   Judi suggested Facebook while addressing the essence of my thoughts.  It was all good and IMHO, was the exact kind of diversion that allowed me to stop dwelling on my misfortunes for a bit and redirect my interests.  I know we can sometimes write stuff that might offend another but I want to think that’s accidental or, at worst, a little careless.  Heck, with all we have going on at times it’s a wonder we’re able to sit at the keyboard and find words that might interest someone let alone have the courage to actually send it. 

Anyhow, I just wanted to thank all you guys for pitching in to offer a thought or two and I look forward to learning and sharing all we have to offer.

Respectfully,

Mike

 

I make a lot of bad ostomy cracks on twitter...I don't find I talk all that well, but I can vent prolifically on there about walking down the street with my bag hanging out...

 

Those moments during the day when I realize that I have not thought about my stoma or worrying about finding a bathroom are few but feels so good!!

I just "celebrated" (couldn't resist) my two-year anniversary of having a permanent illeostomy, or as my niece said last night, "we are celebrating your poop bag!" 

I've been told that over time it gets easier and that I will accept it.  I'm feeling positive, but still waiting.........

This is the first time I have felt the urge to participate in a conversation, so I thank you very much! 

Maybe this is my first step?

 

Welcome and thank you for speaking out.  Eliz

 

Hey Lavern, happy anniversary and thanks so much for joining us.  It does get easier over time because we learn from others and, mainly, because we just do whatever to make it easier. I think we learn how to handle the physical parts of our new selves more quickly and more easily than the emotional and psychological.  But we do it in time; sometimes with some help. There's so much help here.  Just reading about how others handle their golf games, the movies, dinners with friends, and all those other events we could or should be involved in has been priceless.  Yeah, sometimes the reality of our medical situation causes a pause in our fun time but we get it fixed and get over it.  It's really nowhere near as bad as I thought it would be and, for most of us, a blessing.

Respectfully,

Mike 

 

Some of my ramblings & music can be quite boring & even sarcastic  ---But I do love snippitts of information from all parts of the world . I find this site not only informative but also educational ......Now then did I ever tell you about me & the one eyed Barmaid.........

 

Hi Vulcan.  If it's in the center of her forehead, I think I know her.  Probably not as well as you because I had a Studebaker that was no competition for your Jag.

Mike

 

Mike ...No probs with Studebaker  great name in the world of Classic cars . Never did see that many in UK  but knew all about them,, Champion , Avanti, Hawk , Lark etc ....Magical names .....

 

Hi Vulcan.  My Dad had '47 stick shift Champion with a hill holder and a '56 President.  Thanks for the beautiful pictures.

Mike

 

Thank you Mike, for posting a suggestion to help us get to know each other better.   Although we all, "old timers" or newbies have ostomy issues at times, we are more than our ostomy.    This has been a very difficult 2 1/2 years for me, with events unrelated to ostomy causing undo stress, leading to ptsd.   I didn't understand what was happening, and kept thinking that the nightmares, anxiety, change of personality, irritability , sleeplessness etc...."would go away , eventually".   Last August, I realized it was only getting worse, and I did need help.  Sometimes, we're so far down the well, that we don't see the forest for the trees.   With help, in less than a year, I'm coping with my deamons, and am recovering from the worst of the symptoms.   Just because we have an ostomy, doesn't make us immune from other life issues....financial, emotional, or personal.  Today I splurged and ordered  2theater tickets for myself, one for a matinee, and another for an evening performance on the same day.  I call is my tourist day in NY.   It's been a long time since I've done this......mostly because being out of the house for extended time was just too difficult to contemplate.   Instead of dreading being out.....I'm looking forward to .....looking forward.   And all the above has nothing to do with my ostomy.   So for those who are "down in the dumps" and feel they can't move forward.....I'm offering some free advice.    Face your fears...and anxieties, cry when you have to, do deep breathing to get you through the anxiety attacks, and know that you're stronger than any one issue.   Finding that positive focus, is a lot more productive, and a lot more work, than wallowing in sadness, for any reason.  It's just difficult to do the work....but worth it.     Best regards to all who read this.   I don't think I "know it all", but after 50+ years with an ostomy, I do know that other issues sometimes impact our well being....more than the ostomy.  

Next week, I begin treatment for the second time for Hepatitis C.  The last time  , 12 years ago, it involved intefuron and ribovarin and I spent a year enduring the horrible side effects.  In the end, the treatment didn't work.   I swore I'd never do it again, until treatment was 100% effective.  Now there is treatment that is supposedly 95% affective, and so I'm taking a chance on the 3 months of treatment.   I've had progressive liver disease from the Hep C  for the last 50 years ( from transfusions I had when I was sick)  and facing therapy now, at this time of my life is probably the most difficult decision I'me making.   I'm giving up another 3 months of my life to the the minimal " headaches, weakness, and fatigue that the new treatment causes"   So I'm looking forward to a summer of pampering myself with leisure and lots of pool & book time....

Live isn't always easy, but I'd rather have this than the alternative.   2014 & 2015 were not good years for me....but I hope that the second part of 2016 improves my quality of life.    

I hope this helps others who are stuffling with real life issues.... Thanks again Mike.....and all the others who post & reach out. 

Marsha

 

Hi Marsha.  We’re so fortunate for your message.  You are such a wise woman and I thank you for sharing that wisdom with us.  I think lots of folks might have suffered with some of the things you mentioned but were unable or, maybe, ashamed to admit their feelings.  We’re told to be strong. Sometimes we can’t find our strength and you tell us we’ll get there with work.  IMHO, your free advice is priceless.  

Because it’s you and you’ve done your homework so well I look forward to your treatment next week with much optimism and, if you don’t mind, I’m sending a prayer of thanks in advance.  

Enjoy your tourist day.  Pamper yourself this summer and forever after.  You certainly deserve it.

Thank you so much!

Sincerely,

Mike

 

July this year is Royal International Air Tattoo at RAF Fairford UK & as usual I shallbe there  ( Probably for Sunday Show ) Entrance has gone up to a Staggering £49.00 , but well worth it . Loads of new stuff this year  F35 & F 22 from USA plus Migs  from Poland & Chzeck Republic. All along with display teams from around the world . Just got to hope that the weather holds up .

Check out participating countries / Planes here ...http://www.airtattoo.com/airshow/aircraft/confirmed-aircraft

 

£49 for an Air Day? Gosh, I'm sure entry wasn't that eyewatering (by comparison) when we went to Biggin Hill every summer as kids. I suppose the Govt has privatised so much of the RAF now that they have to make a profit somehow......?

 

Chris the whole show now lasts 3 days with a 3 week set up time & 12 months organisation time backed with hundreds Of full & part time staff. All visiting air crew & ground crew are fed & given accommodation in & around the surrounding area So fuel , equipment & participant transportation is a big job. Fuel for participating teams / solo demo nay be paid for by RIAT .  Any profit made all goes to the Royal Air Force Benevolent Fund , a charitable good cause. A simple  air day has become a muti million pound week of high speed noise & fuel burning , supported by air forces from all 4 corners .  The dispay is 3 days X 8 hours long ..not really a day out  for ban the bomb or greenie eco warriors ....

 

Hi Marsha, I read your post and am so sorry that you have to endure three months of treatment. I hope that you respond well to the medications.  You will be in my thoughts and prayers for a quick recovery.  It was nice to meet you at the conference in April.  It was a fun weekend and very uplifting.  Take care and keep positive.  Your posts are always very inspirational.  LH

 

Mike,

I appreciate your thoughtful response.  Feeling isolated is very frustrating, but reading your response and other discussions makes me realize that I am not alone in this daily struggle. 

There are lots of good days and days where I just cry, but hopefully the positive ones will prevail.  At the end of the day, it is our attitude that plays a huge part in how we feel.  And, as time passes, I realize that we have the ability to change our attitude if we want to. 

I've never been the type of person who gives up, but there have been moments over the last two years where I wish I would have been more prepared for what life would be like after this surgery!  But, then I remind myself that without that surgery, I probably would not be alive today, so it brings me back to reality.  

I will wake up every morning with knowing that I am going to make this a good day! 

As the saying goes......."have no colon, but keep on rollin'"

 

Hey Lavern, I wasn't around for a while and I wanted to thank you for your note.  You are certainly learning as you go and you're teaching us we can do the same.  I like that you never give up and love your attitude toward every day.

Sincere thanks,

Mike

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