I am having a colonoscopy on Friday to prepare for reversal surgery!! Yea!!! I am wondering who has gone through a colonoscopy through the stoma and is it uncomfortable after? They are going to scope both ends..ugh...I had to have my stoma revised 2 weeks ago because it closed up (right before reversal). I am thankful to still be alive after a ruptured appendix which abscessed throughout my entire abdomen with sepsis. 7 months on the bag and I am ready for reversal after test results come back. I am not looking forward to colonoscopy prep and wondered what it's like with the bag? Am I literally going to be emptying it every 15 minutes the 24 hours before???
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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