I just wanted to say hello to everyone. This forum has a lot of useful information on it! I may not use the right words, but I just had surgery removing a section of my transverse colon due to a stricture. With the biopsies back now, it isn't cancer. I've been diagnosed with Crohn's Disease. I was told that there was a chance when I had surgery that I may wake up with a temporary ostomy bag :/ On January 2, 2018, it happened... I'm very unprepared and nervous. I stayed in the hospital until 1/7 and I've been home since. They recommended that I use the services of a home health aide, but I declined. I'm stubborn and I'm a medical assistant. I tell you what, no matter how much experience you think you have, nothing will prepare you until you actually are in this situation. I've been doing fairly well, just have high anxiety. I have a follow-up on the 17th to have staples removed and find out when I can return back to work "hoping for 1/22" because I'm not being paid and so far I'm being told at least 5 months before my reversal will take place.
I do have Ohio Medicaid. United Health Care is my PPO, and I've found out that they don't really cover much, but I'll take anything. Ostomy supplies are NOT cheap, and I'll take anything. It's also crazy nobody around me has the supplies I need. I'm being told that I have to do mail order. Do you recommend a certain company?
From day one, I've used Hollister supplies because that's what the hospital started me with. My products are:
18134 - 2 3/4 12" bags, 14104 - that I cut myself, flange is 2 3/4, 7805 - 2'' barrier rings
My insurance will cover 20 skin barriers, 10 bags, and 5 adhesive rings... Is this enough? I'm freaking out. Things are expensive, and I have 3 children :(
I've only used the adhesive rings because my stoma just seems like if you googled "stoma," it doesn't stick out. It sits back in my skin, and it's more oval-shaped.
Any advice would be helpful... as in the company I should use to order supplies. I have sent out for free samples and actually got a nice welcome kit. Is there anywhere that can help get additional supplies for free or at low cost? I do very well so far with it. I haven't had leakage yet. I have learned about pancaking lol. I sometimes feel like my 12'' bag is tooooo long and in the way. Does anyone purchase smaller or disposable bags and kinda switch out depending on circumstances?!! Another thing is I can't sleep well anymore, and I've been in a recliner since I've gotten home "to sleep, that is," not all day lol. I have been taking a gas pill daily to cut down on the noises that decide to come out of my stoma :) I tried to wear a tighter tank top today, but not too tight, with my bag horizontal, and it drove me crazy. The bag sticks to my skin, but I did like it not hanging down but wanted to try something different.