Need help with persistent ostomy bag odor - any solutions?

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Patty poo poo
Nov 27, 2018 10:03 pm

I have a problem with ostomy bag odor at all times, not just when I empty it. I am really getting self-conscious. Is anyone else having this problem?

Puppyluv56
Nov 27, 2018 10:28 pm
Very helpful

Hi Patty, I sometimes feel that as well. Usually on the 4-6 day of a pouch use. I think the filter works for a short time but by the time there has been poo on it, it fails to work after a few days. I have found that safe and simple Ostomy deodorant works best to cure both when emptying the pouch or in between times odor!

Have you tried it? I have not tried M9 but hear it is similar but more expensive.

I once had a friend over and kept smelling horrible odors and had to laugh but had it not been a really close friend, it would not have turned out the same. We laughed about it every time it happened for the few hours she was here! Come to think about it, she has not come back since! Haha Come to find out, it was a pin-sized hole in the Convetec pouch. Guess I should tell her that is not the norm and she can come back! Lol

Puppyluv

Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻

Patty poo poo
Nov 27, 2018 11:16 pm

Thank you so much for getting back to me. I just ordered the M9 from Amazon and should be getting it next week. Fingers crossed it works.

Donspen
Nov 28, 2018 12:35 am

I use the M9 works well. Medicare allows one butt a month. I also use their lube and deodorant, which is also covered. There is no out-of-pocket expense.

Bill
Nov 28, 2018 6:19 am

Hello Patty poo poo. I have deoderant supplied on the NHS. However, on occasions I have found that nouthwash is quite effective for rinsing after I have washed the bag and I like the smell of mint.

Best wishes

Bill

 

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

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looking forward
Nov 28, 2018 1:41 pm

If I could, I would laugh at that one.

ron in mich
Nov 28, 2018 2:01 pm

Hi Patty, if I think my pouch is smelling, I ask my wife if she can smell anything and she is honest enough to tell me.

Patty poo poo
Nov 28, 2018 2:17 pm

Thank you so much for that information, I had no idea that my insurance would cover it!

Puppyluv56
Nov 28, 2018 2:25 pm

Patty,

I ordered my first bottle of Safe and Simple from Amazon but found Edgepark carried it and M9, and now I have ordered it through them to be paid by my insurance.

Puppyluv

Patty poo poo
Nov 28, 2018 6:43 pm

That's great, I use Edge Park for my supplies and from now on I'll order from there and get it covered by insurance. Thanks for the great info.