Friends vs Associates in the Ostomate Community

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Angelicamarie
Feb 09, 2019 11:07 pm

Definition: Friendship is a stronger form of interpersonal bond than an association.

While an associate can be described as a person whom one knows slightly.

We as ostomates tend to say once we join, we're seeking friendship and others who can relate to our condition.

I heard members say outsiders are cruel. I'm referring to non-ostomates when I say outsiders.

"News flash," the same people out there are here too. The only difference is, they are now ostomates.

I have been to other countries, states, and cities and have encountered both good and bad people. Some I called friends while others were associates.

I joined this group in 2016. I stumbled upon this site. No one told me about MeetAnOstomate (MAO).

I had my colostomy in 2015. I have a close friend of 36 years with whom I shared my feelings before and after surgery.

I didn't feel comfortable talking about my colostomy with my family at that time. I was actually ashamed and didn't accept my fate.

I had mentioned before that I attended a local support group but didn't get anything out of it.

The things that members discuss here in our group (MAO) are not discussed locally in other support groups.

In conclusion, I wish you all the best. I hope that those that seek friendship find it. If you're lucky, you'll find good friends and or associates. I did!

Respectfully,

Angelicamarie

Lt. Dan
Feb 10, 2019 12:13 am

Always a pleasure to read your messages, Angelicmarie. You're so right about the definition of friendship as opposed to associates. Like you, I didn't get much out of our local meetings either. It's much more informative on here, as we all share our battles and hopefully triumphs. We are a bunch of tough cookies, aren't we!

Dan

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


Angelicamarie
Feb 10, 2019 9:29 am

Lt. Dan, thanks. I'm sincerely appreciative of your support.

Angel

Puppyluv56
Feb 10, 2019 3:58 pm

Angel,

I have found many friends on this site! I think those non-ostomates who have become one of us have probably adjusted their attitude! You don't know until you get there what it is like! Who would have ever thought, right? I've never tried the local support group, but maybe we are the ones to change things! Go to the support group and open the conversation that does not get talked about there! Talk about the important things! Really help others! My doctor told me I should teach the class! You never know! I just might! How many of those who lecture at a support group actually have an ostomy? Few, if any!

Love the post!

Puppy

Angelicamarie
Feb 10, 2019 5:01 pm

Puppyluv56...Glad you liked it! Yes that’s something to think about, for sure. Thanks....

Angel

 

How to Get Back to Activity after Ostomy Surgery with Kimberly | Hollister

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Past Member
Feb 10, 2019 5:29 pm

Hi Angel,

I've made some very good friends on this site too, and count you as one of them. It's difficult for a lot of us, I think, to talk about the issues we have all gone through or are going through. It's really nice to have a site like this where you know everybody on it understands.

Angelicamarie
Feb 10, 2019 5:39 pm

WeirdNewLife... I also care for you....

NewlifeVictoria
Feb 15, 2019 7:37 pm

Hi, I read what you post. Yes, I agree, Angel, the definition isn't what some think; it's different for everyone, their story, etc. It's great to have others who care and can relate. It's tough to feel comfortable with someone who doesn't have an ostomy; sometimes they look at us like we're weird, freaks, or just different, but we're all the same and do the same. Just some are nicer, sweeter, care more, have big hearts ♥️, understanding, and just saying we're not different but treated differently! Actually, we're usually nicer because we're going through a lot, and I'm here to say I'm different but try not to be. Some also act or don't want anyone to hear ❤️ the real truth about how they feel. I know we all want to be positive and say, "I feel great, doing good, feeling like a younger woman, man," but the reality is we have our days! No one feels great every day.

Angelicamarie
Feb 16, 2019 2:49 pm
NewLifeVictoria... Hang in there!