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Feb 23, 2020

Managing liquid intake with an ileostomy - need advice!

Managing liquid intake and preventing leaks with an ileostomy can be a bit of a balancing act. If you've recently had an ileostomy and are experiencing leaks, you're not alone. Here are some practical tips and insights that might help you manage your situation better:

- Consider replacing plain water with electrolyte beverages. Drinks like isotonic or sports drinks, such as Lucozade Sport or Gatorade, can help replenish electrolytes lost due to high ileostomy output. You can also find electrolyte powders or tablets at pharmacies or online, which can be mixed with water. A common routine is to consume about four sachets mixed in 500 ml of water daily.

- Keep your liquid intake steady, but try to avoid drinking large volumes at once. Drinking too much plain water can increase watery output and lead to leaks. Instead, sip on electrolyte drinks throughout the day. You can also mix in other fluids like lactose-free milk, coffee, green tea, V-8 juice, soft drinks, or even an occasional beer, but remember to sip rather than gulp.

- It's important to monitor and supplement vitamin B12 and other minerals. People with an ileostomy often develop a B12 deficiency, so regular blood tests are recommended. Treatment options include intramuscular B12 injections every three months or daily sublingual B12 tablets. Potassium supplements might also be beneficial, but it's best to confirm this with your doctor.

- Improving the fit of your appliance can help prevent leaks. A well-fitting barrier is crucial, as changes in weight or body shape can affect adhesion. Switching to a different pouching system has helped some people. Products that have been suggested for a better seal include Convatec Esteem+ Soft Convex wafer, Coloplast Convex wafer #16739, and Hollister Adapt Convex Ring used under a flat wafer.

- Experiences with appliance changes can vary. Once you find a fit that works well, some people change their appliance weekly, while others do so every few days. Even with a good fit, occasional high output or blockages can occur, so it's important to keep an eye on your hydration, electrolytes, and appliance fit.
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