Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,467 members
Mar 04, 2020

Concerns about nerve damage after rectal stump removal - seeking advice

This topic is about a 32-year-old man who has been dealing with slow-transit constipation since he was 15. This condition led to a colectomy and the creation of an end ileostomy. However, keeping the rectal stump has caused him daily pain, spasms, pressure, and mucus issues for two years. He is now scheduled for surgery to remove the rectal stump completely, known as abdominoperineal excision. His surgeon mentioned a 5% risk of pelvic nerve damage, which could result in erectile dysfunction or loss of fertility. He is seeking advice and experiences from others who have had the same surgery.

Here are some insights and advice shared by others:

1. Personal outcomes:
- Many men who have undergone rectal stump removal report no issues with erectile function or fertility.
- One person experienced serious nerve damage but was not warned about it beforehand.
- Another person, three weeks after surgery, reported normal sexual function and was advised that any erectile issues could often be managed with medication like sildenafil (Viagra).
- Risk estimates vary widely, from 5% to as high as 95%, depending on different sources.

2. Surgeon and hospital choice:
- It is highly recommended to choose a colorectal surgeon who frequently performs this type of surgery, as their experience can reduce the risk of complications.
- Opting for a world-renowned center, such as St Mark’s Hospital, is considered beneficial.

3. Fertility preservation:
- It is wise to bank sperm at a cryopreservation facility before surgery in case fertility is affected afterward.

4. Decision-making factors:
- The potential improvement in quality of life from removing the rectal stump often outweighs the surgical risks, especially when other medical treatments have not worked.
- It is important to discuss all possible complications, anesthesia risks, and postoperative solutions with both the colorectal surgeon and a gastroenterologist.

5. Psychological and social aspects:
- Finding an understanding and accepting partner may be more challenging than dealing with physical function issues. However, medical professionals are generally supportive of ostomates.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,467 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Saturday Night at the Bodega
Deciding to Keep My Colostomy: My Personal Journey
Debilitating Pain after Granulomas treated with Silver Nitrate
Purple Discoloration on Stoma at 3 O'clock Position
New to Colostomy: Can I Eat Popcorn or Mango?
Erectile Dysfunction
Emptying the Pouch: Best Positions?
New to this Ostomy this year 2025
Introduction
Well hello!

New Topics

I hurt my stoma 😳
Hello
Early Christmas Giggle
New to the Group
Hello New Friends!
LIFE IN THE PRESENT
B. Withers - Be Kind 168
CHECKMATE
Acid burns and skin irritations due to leakages
The sounds of Flabagale
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑