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Removal of rectal stump

Posted by Westlondon, on Wed Mar 04, 2020 12:46 pm

Hi i advice needed please.
I have had chronic constipation since i was around 15 im now 32. I was diagnosed with a slow transit and have had my large intestine removed. I currently have a end stoma in place with my rectal stump still in place. However i have for the last 2 years been having bad pains spasms pressure and mucous daily causing alot of discomfort as my rectum is not able to pass it properly. I have a operation next month to remove my rectum which i am really scared about as im a male and my surgeon tells me that there is a 5% chance of nerve damadge to my sexual organ, i could be left not being able to have erections or not producing sperm. Please anyone who has had this surgery or any knowledge of it get back to me on your thoughts and reviews thanks.

Reply by xnine, on Wed Mar 04, 2020 1:18 pm

I survived. Mine was done all at once.

Reply by veejay, on Wed Mar 04, 2020 3:03 pm

mmm.......more like 95%!

 

Good luck, you will need it.

 

V.J.

Reply by Westlondon, on Wed Mar 04, 2020 5:09 pm
xnine wrote:

I survived. Mine was done all at once.


Thankyou and im glad your doing well.

Reply by Westlondon, on Wed Mar 04, 2020 5:09 pm
veejay wrote:

mmm.......more like 95%!

 

Good luck, you will need it.

 

V.J.


Really ?  Im assuming this happend to you ?

Axl
Reply by Axl, on Wed Mar 04, 2020 9:36 pm

Mine was done second stage of a three stage process to construct a j pouch which failed and is now redundant.

I still have a minimal stump connected to the pouch but all original equipment north of the stump is gone. I was told there was a slight chance of the complications you speak of, just as the complications of anesthetic are discussed beforehand.

I have no difficulties whatsoever.

Reply by veejay, on Thu Mar 05, 2020 1:46 am

You assume correctly my English friend.

 

Unlike you, I was not told of possible "complications"

 

Once again good luck to you.

 

V.J.

Reply by ron in mich, on Thu Mar 05, 2020 11:13 am

Hi all i would recommend you find a surgeon that has done this type of surgery a lot before if thats possible as you may be in an area with only one surgeon available, i was mid thirtys when i had surgery and now 60s and no problems other than what comes with age.  good luck

Reply by Puppyluv56, on Thu Mar 05, 2020 11:37 am

Hey, 

Having been a case manager in an Oncology practice, my  advise to my patients of your age, who was going to have treatment or surgery that may affect their reproductive organs, that they go to a sperm bank for collection and storage in the event you do have an issue and want children in the future. 
good luck with your surgery. 
Puppyluv

Reply by Westlondon, on Thu Mar 05, 2020 6:50 pm
ron in mich wrote:

Hi all i would recommend you find a surgeon that has done this type of surgery a lot before if thats possible as you may be in an area with only one surgeon available, i was mid thirtys when i had surgery and now 60s and no problems other than what comes with age.  good luck


Hi ron 

Thankyou that is very encouraging and im glad you had no issues. I am with a great surgeon in a world renowned specialist hospital called st marks hospital. 

Reply by Westlondon, on Thu Mar 05, 2020 6:51 pm
Axl wrote:

Mine was done second stage of a three stage process to construct a j pouch which failed and is now redundant.

I still have a minimal stump connected to the pouch but all original equipment north of the stump is gone. I was told there was a slight chance of the complications you speak of, just as the complications of anesthetic are discussed beforehand.

I have no difficulties whatsoever.


Hi axl

Thanks for that and im also happy you are doing fine with it.

Reply by Westlondon, on Thu Mar 05, 2020 6:52 pm
Puppyluv56 wrote:

Hey, 

Having been a case manager in an Oncology practice, my  advise to my patients of your age, who was going to have treatment or surgery that may affect their reproductive organs, that they go to a sperm bank for collection and storage in the event you do have an issue and want children in the future. 
good luck with your surgery. 
Puppyluv


Hi

Yes thanks i have been looking to do that aswell .

Reply by Thatukdude, on Tue Mar 10, 2020 1:18 pm

Hi, I had my 'Action Man arse' (barbie butt's are for women you see) 3 weeks ago, had the rectal stump removed as like you, had nothing but problems with the stump after my ileostomy in 2017.

 

Good news is, I can confirm all gentleman's Equipment is functioning and firing as it should! I'm 35 with 3 kids, so I've done my procreation bit but obviously still like to partake for fun!

 

My surgeon discussed the risks and potential solutions before the op, as otherwise healthy youngish men it can be as easy as a Viagra to solve if needed

 

All the best 👍

Reply by Westlondon, on Thu Mar 12, 2020 6:00 am
Thatukdude wrote:

Hi, I had my 'Action Man arse' (barbie butt's are for women you see) 3 weeks ago, had the rectal stump removed as like you, had nothing but problems with the stump after my ileostomy in 2017.

 

Good news is, I can confirm all gentleman's Equipment is functioning and firing as it should! I'm 35 with 3 kids, so I've done my procreation bit but obviously still like to partake for fun!

 

My surgeon discussed the risks and potential solutions before the op, as otherwise healthy youngish men it can be as easy as a Viagra to solve if needed

 

All the best 👍


Hi that is very good  news  seeing as your around my age group  to. Did your surgeon before tell you that it was a big risk or a very small risk ? Also was it your surgeons idea to remove the rectum or yours ? Was your surgeon hopefull in a good outcome after surgery ?

 Thanks

Reply by Thatukdude, on Thu Mar 12, 2020 12:54 pm
Westlondon wrote:
Thatukdude wrote:

Hi, I had my 'Action Man arse' (barbie butt's are for women you see) 3 weeks ago, had the rectal stump removed as like you, had nothing but problems with the stump after my ileostomy in 2017.

 

Good news is, I can confirm all gentleman's Equipment is functioning and firing as it should! I'm 35 with 3 kids, so I've done my procreation bit but obviously still like to partake for fun!

 

My surgeon discussed the risks and potential solutions before the op, as otherwise healthy youngish men it can be as easy as a Viagra to solve if needed

 

All the best 👍


Hi that is very good  news  seeing as your around my age group  to. Did your surgeon before tell you that it was a big risk or a very small risk ? Also was it your surgeons idea to remove the rectum or yours ? Was your surgeon hopefull in a good outcome after surgery ?

 Thanks


Hello, yeah it was discussed, I think in the under 40's age group it's like 20% chance of issues with the old chap, but pretty much all of those issues can be solved 

 

And it was a "We've reached the end of the road medicinally" decision, steroids caused arthritis, biologicals just didn't work for me, so for quality of life, myself, my surgeon and my gastro consultant all agreed this was the way.

 

And so far so good! 

Reply by CincinnatiKid, on Wed Mar 25, 2020 10:47 pm

Sorry you're going through WestLondon. I had my rectum completely removed along with my large intestine in October 1992  because the ulcerative colitis was so severe there was no other alternative. The nerve endings have been removed from around my stoma as well. But I haven't had any sexual problems, inability to get erections, etc. The surgeon never told me there was a possibility of that. But I think you have a very high percentage of being able to pull through this operation without any problems to your sex life. I haven't had any problems except for finding a non-ostomate female who wasn't put off by it. Women in the various medical prrofessions are not put off by it because they're very familiar with ostomates. It's no big thing for them.

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