I had surgery for an ostomy about 7 weeks ago. It has been going fine except for a very high output. I've been following my doctor's instructions by following a high-fiber diet and adding Citrucel twice a day (2 heaping tablespoons in a small amount of applesauce). I've now added two Imodium crushed up in applesauce in the morning and evening. It's been several days of using the Imodium. Today, after breakfast, my stomach started to hurt, like an old-fashioned stomach ache. It doesn't feel like a Crohn's blockage, and I don't currently have any narrowing in my colon or small intestine. My output has slowed since breakfast, but there is still some output. Does this sound like a blockage? Thanks for any advice.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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Learn more about ostomy accessories, and when to use them.
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